Table 3.
Item | US | UK | ||||||
---|---|---|---|---|---|---|---|---|
n | Mean | sd | n | Mean | sd | P* | Direction | |
Factor 1 Impact of Role Change | ||||||||
2 I feel sad. | 112 | 5.39 | 4.94 | 99 | 7.14 | 4.99 | .011 | UK>US |
6 I miss the relationship I had with him/her | 110 | 8.06 | 6.14 | 100 | 9.52 | 5.48 | ns | |
1 I feel no one knows what I'm going through. | 112 | 4.13 | 4.74 | 95 | 4.71 | 4.65 | ns | |
14 I feel overwhelmed by the changes in my life. | 112 | 4.31 | 5.16 | 102 | 4.07 | 4.69 | ns | |
7 I'm like a parent to him/her. | 103 | 5.18 | 6.14 | 92 | 6.95 | 5.48 | ns | |
5 It is difficult to distinguish the HD from the person | 110 | 5.43 | 5.87 | 89 | 6.36 | 5.30 | ns | |
3 I worry about our family's finances. | 118 | 5.69 | 5.60 | 102 | 3.74 | 4.70 | .006 | US>UK |
Total for Factor 1 | 121 | 5.34 | 4.21 | 106 | 5.98 | 3.53 | ns | |
Factor 2 Sense of Isolation | ||||||||
16 Family doesn't want to be around him/her. | 113 | 3.52 | 4.83 | 93 | 2.95 | 4.48 | ns | |
21 I resent relatives who could help but choose not to. | 112 | 3.75 | 5.35 | 96 | 3.70 | 5.76 | ns | |
24 I worry that I will develop HD. | 20 | 3.95 | 5.38 | 11 | 0.00 | 0.30 | .003 | US>UK |
Total for Factor 2 | 119 | 3.54 | 4.32 | 104 | 3.17 | 4.29 | ns | |
Factor 3 Concern for Children | ||||||||
27 I worry that my child(ren) will develop HD. | 79 | 8.78 | 6.76 | 39 | 5.23 | 6.29 | .007 | US>UK |
28 I worry that the quality of my children's relationship with him/her has declined since the illness. | 77 | 5.38 | 6.44 | 48 | 2.79 | 4.66 | .011 | US>UK |
Total for Factor 3 | 83 | 7.05 | 5.36 | 54 | 3.13 | 4.32 | .000 | US>UK |
Total | 121 | 5.23 | 3.83 | 107 | 5.23 | 3.17 | ns |
All tests were conducted using equal variance independent t tests when group variances were not significantly different or unequal variance independent t tests when group variances were significantly different.