Table 3.
CHD-TAAQOL—Worries, Symptoms, and Impact of Cardiac Surveillance for Whom Patients Reported Distress
| Variable | n (%)* | Mean ± SD |
|---|---|---|
| Worries | 70.4 ± 18.6 | |
| Current health | 45 (83) | |
| Job/future job | 37 (69) | |
| Working life | 33 (61) | |
| Living independently | 29 (54) | |
| Exertion or sports | 26 (48) | |
| Education | 25 (46) | |
| Relationships | 25 (46) | |
| Having children | 25 (46) | |
| Having friends | 24 (44) | |
| Being home alone | 18 (33) | |
| Symptoms | 77.4 ± 13.8 | |
| Shortness of breath walking ½ to 3 miles | 37 (69) | |
| Palpitations | 33 (61) | |
| Dizziness | 33 (61) | |
| Nocturia | 26 (48) | |
| Shortness of breath walking < 100 yards | 23 (43) | |
| Edema (ankle, legs, abdomen) | 15 (28) | |
| Looking pale | 15 (28) | |
| Cyanosis during exercising | 14 (26) | |
| Orthopnea | 12 (22) | |
| Impact of cardiac surveillance | 80 ± 10.3 | |
| Cardiac hospital admission | 19 (35) | |
| Cardiology visit | 16 (30) | |
| Echocardiogram | 13 (24) | |
| Taking blood | 13 (24) | |
| Electrocardiogram | 12 (22) | |
| Chest x-ray | 11 (20) | |
| Flu vaccine | 6 (11) |
*
Percentages totaled and ranked according to transformed scores ≥3 on a scale of 1–5.
Scale range 0–100; higher scores indicating less symptoms, worries and impact of cardiac surveillance, or better HRQOL.
SD, standard deviation; CHD-TAAQOL, Congenital Heart Disease TNO/AZL Adult Quality Of Life; HRQOL, health-related quality of life.