Table 3.

Reasons for participating in the Mount Sinai Biobank

Categories	Participant quotes
1. Altruism
Good cause	“…if I donate blood, I just figured why not? It’s for a cause.”
To help others	“If it helps one, one other person, one little finding, then it was totally worth it.”
	“Because it might help somebody else.”
To advance research	“Yeah. I was just trying to say that right now, my participation was really because I feel it’s in its infancy. ‘Cause I do feel like there are dangers associated with this kind of testing, with the knowledge base, but it’s worth the risk, and it is in its infancy. They don’t know whether certain genes strain is the contributing factor. That’s the process, you know that’ll take 200,000 people if you don’t have it or something.”
2. Personal and family benefit
Learn more information	“Well, I would like to know more about what the blood-drawing brings up.”
Learn more about family	“I find it interesting, ‘cause when I was young I did a genealogy chart, so I found out a lot of things already about my family, so I am kind of more curious to find out some more information.”
Learn more about diseases that run in family	“I wanted to be a part of it because I wanted to learn more about, causes of, and more about, you see heart disease and stuff like that because I know … my grandmother, she was a diabetic, my great grandmother was a diabetic, my mom passed, and she was a diabetic. And I have a brother who is a diabetic. So I am concerned”
Learn more about self	“I wants to know more information about knowing who I am, what’s inside of me, and one time I never want to know … and it’s important that I know so I could pass it on to my kids, and this is embarrassing, when you don’t know.”
To receive personal results	“I thought they would give me, like, in terms of who I was related to. Like Bush. Or …?”
3. To help the next generation
Help next generation	“I believe that it’s gonna be helpful to the next generation, not so much for this generation, but the next generation.”
Help children and grandchildren	“The generation … my children is coming up and my grandchildren. We gotta be prepared for, for their health, their well being, because there are gonna be a lot of people sick.”
4. General Curiosity
Curious	“I was curious about the disease and how it works.”
Because it’s cool	“I thought it was cool … I thought it was great … I think one day I could, call up and say, hey, what goes on with those genes. I’m care free when it comes to that, all of that stuff. I feel like … we are here, time is limited, let’s live, what happens along the way, its … its, you don’t have control over that.”