Table 4.

Information needs: type of information about genetics desired

Information needs category	Type of information desired
Genetic research	What type of research can be done with a blood sample?
	How will confidentiality be protected?
	What are the benefits?
Genetic testing	Roles of health and life insurance in genetic testing
	The pros and cons of genetic testing
	The procedure/process of genetic testing
	Why should we do genetic testing?
	What will the genetic test results tell me?
	How will confidentiality be protected?
	Is counseling available before and after test result?
	Who could get genetic testing?
	What genetic tests are available?
	Am I susceptible?
	Long-term effects
	How much longer do I have to live
	Help with dealing with the anxiety of genetic testing
	Can testing harm the person being tested?
Genetics	How genetic diseases are passed down
	How genetics affect different races
	How genetics affect genders