Table 1.

Patients characteristics at diagnosis

Patient	Year range of diagnosis	Age range at diagnosis (years)	Duration range of symptoms (months)	Metastases at diagnosis
1		2-3	NA	yes
2		3-4	<2	yes
3	1980 -1989	3-4	<2	no
4		3-4	<2	no
5		4-5	>4	no
6		4-5	2-4	yes
7		4-5	<2	no
8	1990 -1999	4-5	2-4	no
9		3-4	<2	no
10		4-5	<2	yes
11		3-4	2-4	no
12	2000 -2007	4-5	<2	yes
13		1-2	<2	no
14		4-5	<2	no
15		2-3	2-4	yes

NA: data non-available