TABLE 4.
Domains and Importance Scores Across Diseases
| Adult Epilepsy | MS | Stroke | PD | ALS | Pediatric Epilepsy | MD | Generic or Targeted | |
|---|---|---|---|---|---|---|---|---|
| Physical | 2 | 5 | 5 | 5 | 5 | 2 | 4 | Generic |
| Cognitive | 4 | 3 | 4 | 5 | 2 | 3 | 2 | Generic |
| Emotional | 4 | 4 | 3 | 4 | 3 | 2 | 2 | Generic |
| Social | 4 | 4 | 4 | 4 | 5 | 4 | 4 | Generic |
| Communication | 2 | 1 | 2 | 2 | 3 | 1 | 1 | Targeted |
| Fatigue | 1 | 4 | --- | 1 | --- | 1 | 2 | Targeted |
| Pain | 2 | 1 | 2 | 1 | 2 | 1 | 2 | Targeted |
| Treatment Effect | 2 | 2 | 1 | 4 | 1 | 2 | 1 | Targeted |
| Bowel & Bladder | --- | 2 | --- | 1 | --- | --- | 1 | Targeted |
| Independence | 1 | 1 | 2 | 2 | 3 | 2 | 3 | Targeted |
| Stigma | 2 | 1 | 1 | 2 | --- | 3 | --- | Targeted |
| Personality/Behavior Change | 1 | 1 | 1 | 1 | 1 | 1 | 2 | Targeted |
| Positive Psychological Function | --- | 2 | 2 | --- | 4 | 2 | 1 | Targeted |
| Sensory Symptoms | 1 | 1 | 1 | 1 | --- | 1 | 1 | NA |
Note: Number in cell indicates the number of sources (5 = highest) that indicated the domain was of importance for the disease; Generic Concept = rating ≥3 in 50% of diseases; Targeted = ≥2 in less than 5 diseases; MS = Multiple Sclerosis; PD = Parkinson’s Disease; ALS = Amyotrophic lateral sclerosis; MD = Muscular Dystrophy