Table 2.
Participant Characteristics by Randomized Consent Type
| Randomized Consent Typeab | ||||
|---|---|---|---|---|
| Characteristic | All Participants (n=323) |
Traditional (n=110) |
Binary (n=103) |
Tiered (n=110) |
| Genomic Study | ||||
| Autism | 8 (2.5) | 4 (3.6) | 2 (1.9) | 2 (1.8) |
| Brain Cancer | 76(23.5) | 26(23.6) | 24(23.3) | 26(23.6) |
| Brain Control | 16 (5.0) | 5 (4.6) | 6 (5.8) | 5 (4.6) |
| Epilepsy | 29 (9.0) | 10 (9.1) | 10 (9.7) | 9 (8.2) |
| Liver | 93(28.8) | 30(27.3) | 29(28.2) | 34(30.9) |
| Pancreas | 101(31.2) | 35(31.8) | 32(31.1) | 34(30.9) |
| Age – Yr. | ||||
| Mean(SD) | 48.8(15.4) | 50.6(15.7) | 46.0(15.5) | 49.67(14.7) |
| Median | 48.5 | 49 | 45 | 49 |
| Range | 18–86 | 18–82 | 19–81 | 18–86 |
| Sex | ||||
| Male | 138(42.7) | 51(46.4) | 40(38.8) | 47(42.7) |
| Female | 185(57.3) | 59(53.6) | 63(61.2) | 63(57.3) |
| Ethnicity and Racec | ||||
| Non-Hispanic white | 175(56.1) | 52(48.6) | 58(59.32) | 65(60.7) |
| Non-Hispanic minority | 74(23.7) | 28(26.2) | 21(21.4) | 25(23.4) |
| Hispanic | 63(20.2) | 27(25.2) | 19(19.4) | 17(15.9) |
| Unknown | 11 | 3 | 5 | 3 |
| Marital Status | ||||
| Married | 149(63.7) | 46(64.8) | 49(62.8) | 54(63.5) |
| Divorced, widowed, or separated | 64(27.4) | 17(23.9) | 22(28.2) | 25(29.4) |
| Never married | 21 (8.9) | 8(11.3) | 7 (9.0) | 6 (7.1) |
| Unknown | 89 | 39 | 25 | 25 |
| Religion d | ||||
| Christian | 191(81.3) | 62(84.9) | 60(77.9) | 69(81.2) |
| Other | 44(18.7) | 11(15.1) | 17(22.1) | 16(18.8) |
| Unknown | 88 | 37 | 26 | 25 |
| Education | ||||
| ≤ 11th Grade | 17 (7.3) | 4 (5.6) | 5 (6.6) | 8 (9.4) |
| High School/GED | 58(24.9) | 17(23.6) | 24(31.6) | 17(20.0) |
| 1–3 yrs. of college | 83(35.6) | 31(43.0) | 19(25.0) | 33(38.8) |
| 4+ yrs. of college | 47(20.2) | 11(15.3) | 20(26.3) | 16(18.8) |
| Graduate degree | 28(12.0) | 9(12.5) | 8(10.5) | 11(12.9) |
| Unknown | 90 | 38 | 27 | 25 |
| Annual Household Income | ||||
| <$20,000 | 33(16.2) | 11(17.2) | 12(17.9) | 10(13.7) |
| $20,000–$40,000 | 50(24.5) | 15(23.4) | 18(26.9) | 17(23.3) |
| $40,000–$60,000 | 30(14.7) | 9(14.1) | 7(10.4) | 14(19.2) |
| >$60,000 | 91(44.6) | 29(45.3) | 30(44.8) | 32(43.8) |
| Unknown | 119 | 46 | 36 | 37 |
a
Not all respondents answered all questions.
b
No. (%) of participants unless otherwise indicated.
c
Ethnicity and race were self-reported. Non-Hispanic minority includes: Asian, Native American/Alaskan Native, Pacific Islander and Other.
d
Christian includes: Catholic, Protestant, Evangelical; Other includes: Jewish, Muslim, Atheist/Agnostic and Other.