Table 2.
Health utilities for adult subjects by self-report ((≥19 years), child subjects by parent proxy-report (8-18 years), and child subjects by self-report (8-18 years).
| Adult Self-Report (≥19 yrs) (n=213) |
Parent Proxy-Report (Parents of children 8-18 years) (n=223) |
Child Self-Report (8-18 years for HUI n=231) (15-18 yrs for TTO, n=95) |
|||||||
|---|---|---|---|---|---|---|---|---|---|
| Mean (SD) |
Median (25th%-75th %) |
% at Maximum Value (n) | Mean (SD) |
Median (25th%-75th %) |
% at Maximum Value (n) | Mean (SD) |
Median (25th%-75th %) |
% at Maximum Value (n) | |
| Current Overall Quality of Life | |||||||||
| HUI | *0.85 (0.17) | 0.91 (0.79-0.97) | 14 (30) | †0.91 (0.12) | 0.95 (0.88-1.00) | 35 (78) | *0.89 (0.12) | 0.92 (0.83-1.00) | 29 (68) |
| Experienced TTO | 0.81 (0.25) | 0.92 (0.73-0.98) | 33 (70) | †0.84 (0.23) | 0.92 (0.86-0.98) | 39 (86) | 0.81 (0.26) | 0.97 (0.73-0.98) | 31 (29) |
| Hypothetical Complication States | |||||||||
| Blindness | §0.52 (0.33) | 0.50 (0.23-0.83) | 22 (40) | §0.69 (0.29) | 0.79 (0.48-0.98) | 22 (40) | - | - | - |
| End Stage Renal Disease | §0.47 (0.32) | 0.48 (0.23-0.73) | 8 (16) | §0.55 (0.33) | 0.50 (0.25-0.86) | 15 (26) | - | - | - |
| Angina | 0.74 (0.28) | 0.85 (0.61-0.98) | 23 (48) | 0.81 (0.23) | 0.90 (0.73-0.98) | 31 (56) | - | - | - |
| Stroke | §0.34 (0.31) | 0.23 (0.03-0.56) | 4 (9) | §0.53 (0.33) | 0.50 (0.25-0.86) | 13 (23) | - | - | - |
| Amputation | §0.73 (0.30) | 0.88 (0.50-0.98) | 27(57) | §0.82 (0.24) | 0.94 (0.78-0.98) | 38 (68) | - | - | - |
*
Statistically significant differences in utilities comparing child self-report with adult self-report (p<0.01)
†
Statistically significant differences in utilities for general quality of life comparing the HUI with the TTO (p<0.01).
§
Statistically significant differences in utilities for hypothetical complication states comparing parent proxy-report with adult self-report for blindness and stroke (p<0.001), end stage renal disease (p<0.01), and amputation (p<0.01).