Table 2.
3-month post-intervention outcomes: plans and actions
| Outcomes | FACE | HLC | P+ value |
|---|---|---|---|
| FACE intervention | HLC comparison | ||
| n = 20 | n = 18 | ||
| Completed Five Wishes or other AD | 19a (95%) | 2 (11%) | <0.001* |
| Statement of Treatment Preferences: | Stop all efforts+ | ||
| Situation #1 | 3 (15%) | 1 (6%) | 0.187a |
| Situation #2 | 5 (25%) | 5 (28%) | 1.000a |
| Situation #3 | 6 (30%) | 3 (17%) | 0.528a |
Notes: “To stop all efforts to keep me alive (For me quality of life is more important than length of life). This includes such treatments as CPR, blood transfusions, kidney dialysis and tube feedings.
1. If I have serious complications from AIDS, such as an overwhelming infection or pneumonia, so that I was facing a long hospital stay, with many medical treatments AND my chance of living through this complication is low (for example, only 5 out of 100 kids will live), I would choose the following: (Whatever my choice, I want to be kept as comfortable as possible).
2. If I have AIDS and a serious complication, such as an overwhelming infection or pneumonia and have a good chance of living through this complication, but it was expected that I would never be able to walk or talk again, and I would need 24 hour nursing care, I would choose the following. (Whatever my choice, I want to be kept as comfortable as possible).
3. If I have AIDS and a serious complication, such as an overwhelming infection or pneumonia and have a good chance of living, but it was expected that I would never know who I was or who I was with and would need 24 hour nursing care, I would choose the following. (Whatever my choice, I want to be kept as comfortable as possible).
Notes: Data are frequencies. 1-sided Fisher Exact Test. 1 patient completed Five Wishes outside of one month post session window for protocol. No significant differences by perinatal vs behavioral transmission for completing advance directive, P = 0.284.
Significant at the P = 0.05 level.
Abbreviations: CPR, cardiopulmonary resusication; FACE, Family Centered Advance Care Planning; EOL, end-of-life; HIV/AIDS, human immunodeficiency virus/acquired immune deficiency syndrome; HLC, healthy living control.