Table V.
Respondents' Views on Biobank Models
Nashville Community Health Survey N(%) | Vanderbilt Faculty and Staff Survey N (%) | ||
---|---|---|---|
DNA biobank research is fine as long as people can choose not to have their DNA included. | DNA databanks with all identifying information removed are fine as long as people can choose to opt out of having their DNA included. | ||
Responses | 629 | Responses | 4033 |
Somewhat or Strongly Agree | 590 (93.9) | Strongly or Somewhat Agree | 3816 (94.6) |
Somewhat or Strongly Disagree | 38 (6.1) | Somewhat or Strongly Disagree | 217 (5.4) |
You are comfortable with your DNA being used for research as long as personal information that can identify you is not included | DNA databanks are fine as long as all identifying information is removed. | ||
Responses | 639 | Responses | 4037 |
Somewhat or Strongly Agree | 557 (87.3) | Strongly or Somewhat Agree | 3766 (93.3) |
Somewhat or Strongly Disagree | 81 (12.7) | Somewhat or Strongly Disagree | 271 (6.7) |
If all personal information is removed, researchers should be able to use leftover blood for research that has been approved by an ethics review board. | DNA databanks with all identifying information removed are fine as long as an ethics review panel approved research with DNA in the databank | ||
Responses | 630 | Responses | 4020 |
Somewhat or Strongly Agree | 557 (88.5) | Strongly or Somewhat Agree | 3682 (91.6) |
Somewhat or Strongly Disagree | 73 (11.5) | Somewhat or Strongly Disagree | 338 (8.4) |
Researchers should be allowed to use de-identified genetic information without getting written permission from patients. | DNA databanks with all identifying information removed are fine as long as written permission from patients is required for their DNA to be included. | ||
Responses | 639 | Responses | 4017 |
Somewhat or Strongly Agree | 291 (45.5) | Strongly or Somewhat Agree | 3573 (88.9) |
Somewhat or Strongly Disagree | 348 (54.5) | Somewhat or Strongly Disagree | 444 (11.1) |