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. Author manuscript; available in PMC: 2012 Dec 1.
Published in final edited form as: Am J Med Genet A. 2011 Nov 7;155(12):2982–2990. doi: 10.1002/ajmg.a.34304

Table V.

Respondents' Views on Biobank Models

Nashville Community Health Survey N(%) Vanderbilt Faculty and Staff Survey N (%)
DNA biobank research is fine as long as people can choose not to have their DNA included. DNA databanks with all identifying information removed are fine as long as people can choose to opt out of having their DNA included.
Responses 629 Responses 4033
Somewhat or Strongly Agree 590 (93.9) Strongly or Somewhat Agree 3816 (94.6)
Somewhat or Strongly Disagree 38 (6.1) Somewhat or Strongly Disagree 217 (5.4)
You are comfortable with your DNA being used for research as long as personal information that can identify you is not included DNA databanks are fine as long as all identifying information is removed.
Responses 639 Responses 4037
Somewhat or Strongly Agree 557 (87.3) Strongly or Somewhat Agree 3766 (93.3)
Somewhat or Strongly Disagree 81 (12.7) Somewhat or Strongly Disagree 271 (6.7)
If all personal information is removed, researchers should be able to use leftover blood for research that has been approved by an ethics review board. DNA databanks with all identifying information removed are fine as long as an ethics review panel approved research with DNA in the databank
Responses 630 Responses 4020
Somewhat or Strongly Agree 557 (88.5) Strongly or Somewhat Agree 3682 (91.6)
Somewhat or Strongly Disagree 73 (11.5) Somewhat or Strongly Disagree 338 (8.4)
Researchers should be allowed to use de-identified genetic information without getting written permission from patients. DNA databanks with all identifying information removed are fine as long as written permission from patients is required for their DNA to be included.
Responses 639 Responses 4017
Somewhat or Strongly Agree 291 (45.5) Strongly or Somewhat Agree 3573 (88.9)
Somewhat or Strongly Disagree 348 (54.5) Somewhat or Strongly Disagree 444 (11.1)