Table 2.
Study information for articles retrieved using databases, iterative review of each paper's references, and purposefully
| N | |
|---|---|
| Total sample pool of 516 articles from 199 journals | |
| Mean articles per journal | 2.6 |
| Number of journals with one article only | 123 |
| Number of journals with 10 or more articles | 9 |
| Randomly selected 30 articles from 24 journals | N (%) |
| Retrieved from | |
| PUBMED | 14 (47%) |
| Reference sections of articles | 9 (30%) |
| Other databases | 7 (23%) |
| Study type | |
| Qualitative (Interviews, Focus Groups, Ethnography) | 13 (43%) |
| Literature reviews+ | 8 (26%) |
| Quantitative (Survey, Time diaries) | 7 (20%) |
| Mixed methods | 2 (7%) |
| Randomized Intervention Studies | 0 |
| Study period | |
| Cross-sectional or one visit | 21 (70%) |
| Longitudinal or multiple visits | 1 (3%) |
| N/a (literature review) | 8 (27) |
| Contained visual model | |
| Yes | 5 (17%) |
| No | 25 (83%) |
| Disease type | |
| Unspecified (CSCHN, Chronic Illness, Disability) | 16 (53%) |
| Asthma | 3 (10%) |
| Epilepsy | 2 (7%) |
| Assisted by medical technology | 2 (7%) |
| Type 1 Diabetes | 2 (7%) |
| Other* | 5 (17%) |
| Country of study site | |
| United States | 14 (47%) |
| Australia, Canada, U.K. | 11 (37%) |
| Other** | 5 (17%) |
| Gender of parent-participants | |
| Mothers only | 5 (17%) |
| Mothers and fathers eligible, greater than 55% mothers | 7 (23%) |
| Mothers and fathers eligible, less than or equal to 55% mothers | 3 (10%) |
| Fathers only | 2 (7%) |
| Unspecified | 5 (17%) |
| N/a (literature review) | 8 (27%) |
| Addressed racial or ethnic minorities | |
| Yes | 1 (3%) |
| No | 29 (97%) |
| Purposefully selected 15 additional articles from 10 journals | |
| Longitudinal observational studies | 5 (33%) |
| Intervention studies | 5 (33%) |
| Addressed racial, ethnic, or very poor minorities | 5 (33%) |
+Included only 1 Literature Review with explicit search criteria. * Other disease includes 1 of each of the following: Anorexia, Cancer, Juvenile Rheumatoid Arthritis, Schizophrenia, and Infants At-Risk of SIDS.
** Other country includes 1 of each of the following: Germany, New Zealand, Sweden, Switzerland, and 1 study comparing U.S. and Icelandic populations