Table 2.
Establishing content validity for the modified Resource Utilization Questionnaire for Type 1 Diabetes Mellitus (mRUQ-T1DM)
| Resource type | Phase I Research Experts (n=6) | Phase II Expert Panel (n=7) | Phase III Focus group (n=6) | Final mRUQ-T1DM | ||||
|---|---|---|---|---|---|---|---|---|
| Items (Sub-items) | Recall timeframe (months) | Items (Sub-items) | Recall timeframe (months) | Items (Sub-items) | Recall timeframe (months) | Items (Sub-items) | Recall timeframe (months) | |
| Direct healthcare | ||||||||
| Emergency room visits | 1 | 6 | 1 | 3 | 1 | 3 | ||
| Hospitalizations | 1 | 6 | 1 | 3 | 1 | 3 | ||
| Outpatient medical visits* | 1 (8) | 6 | 1 (14) | 3 | 1 (20) | 3 | 1 (20) | 3 |
| Equipment/medications | 1 | 3 | 1 (23) | 3 | 1 (23) | 3 | ||
| Health insurance premium/deductible | 1 | 12 | 1 | 12 | ||||
| Non-direct healthcare | ||||||||
| Home insurance rider to cover loss of insulin pump | 1 | 12 | 1 | 12 | ||||
| Mental health counseling† | 1 | 3 | 1 | 3 | ||||
| Child care to attend medical appointments | 1 | 3 | 1 | 3 | ||||
| Time | ||||||||
| Attending medical appointments* | 1 (8) | 6 | 14 | 3 | 1 (20) | 3 | 1 (20) | 3 |
| Communicating diabetes information | 1 | 1 | 1 (4) | 1 | 1(4) | 1 | ||
| Receiving diabetes/insulin pump education | 1 | 6 | 1 | 3 | 1 | 3 | ||
| Receiving home tutoring | 1 | 3 | 1 | 3 | ||||
| Receiving mental health counseling† | 1 | 3 | 1 | 3 | ||||
| Time lost to diabetes self-management at home | 1 | 3 | 1 | 3 | ||||
| Attending to insulin pump technical issues | 1 | 3 | 1 | 3 | ||||
| Productivity | ||||||||
| Diabetes related school absence | 1 | 3 | 1 | 3 | ||||
| Diabetes self-management at school | 1 | 3 | 1 | 3 | ||||
| Impact on mother | 6 | 7 days | 6‡ | 7 days | 6‡ | 1 | 6 | 1 |
| Impact on father | 6 | 7 days | ||||||
*
One questionnaire item includes two resource utilization components: direct healthcare and time;
†
One questionnaire item includes two resource utilization components: non-direct healthcare and time;
‡
Parent completing RUQ would complete “impact on parent” questions for self only