Table 2.
List of data elements and their availability in the PHR
| Data types | Available (% of total cohort) | Available by policy but not completed (%) | Not available and no policy decision yet (%) | Specifically withheld according to policy* (%) |
| Laboratory results | 16 (94) | 1 (6) | 0 | 0 |
| HIV results | 3 (18) | 0 | 1 (6) | 13 (76) |
| Genetic test results | 7 (41) | 0 | 6 (35) | 4 (24) |
| Medication data | 15 (88) | 1 (6) | 1 (6) | 0 |
| Encounter type and date | 14 (82) | 0 | 3 (18) | 0 |
| Allergy data | 14 (82) | 0 | 3 (18) | 0 |
| Immunization data | 12 (70) | 2 (12) | 3 (18) | 0 |
| Radiology reports | 11 (65) | 2 (12) | 3 (17) | 1 (6) |
| Problem list | 10 (59) | 3 (18) | 4 (23) | 0 |
| Other diagnostic reports | 7 (41) | 1 (6) | 9 (53) | 0 |
| EKG tracings | 5 (29) | 0 | 12 (71) | 0 |
| Clinical notes | 4 (24) | 4 (24) | 7 (41) | 2 (12) |
| Psychiatric notes | 1 (6) | 0 | 8 (47) | 8 (47) |
| Discharge summaries | 5 (29) | 3 (18) | 8 (47) | 1 (6) |
| Operative reports | 3 (18) | 1 (6) | 13 (76) | 0 |
| Pathology reports | 4 (23) | 1 (6) | 9 (53) | 3 (18) |
*
Decisions made for data release for each type of data element per institutional representative.
PHR, personal health record.