Table 3.
Frequency in rank order of approved and pending requests for data sets and biospecimens in NIDDK Data Repository (as of 9 March 2011)
| Rank | Acronym | Study title | Data requests | Specimen requests | Total |
|---|---|---|---|---|---|
| 1 | DCCT/EDIC | Type 1 Diabetes Control and Complications Trial & Epidemiology of Diabetes Interventions and Complications Follow-up | 36 | 6 | 42 |
| 2 | DPP | Diabetes Prevention Program | 21 | 0 | 21 |
| 3 | T1DGC | Type 1 Diabetes Genetics Consortium | 18 | 2 | 20 |
| 4 | MDRD | Modification of Diet in Renal Disease | 18 | 1 | 19 |
| 5 | VIRAHEP-C | Viral Resistance to Antiviral Therapy of Chronic Hepatitis C | 9 | 5 | 14 |
| 6 | HEMO | Hemodialysis Study | 11 | 3 | 14 |
| 7 | GoKinD | Genetics of Kidneys in Diabetes | 10 | 3 | 13 |
| 8 | CRISP | Consortium for Radiological Imaging Studies of Polycystic Kidney Disease | 10 | 3 | 13 |
| 9 | DPT-1 | Diabetes Prevention Trial of Type 1 Diabetes | 8 | 2 | 10 |
| 10 | AASK | The African American Study of Kidney Disease and Hypertension Study | 9 | 0 | 9 |
| 11 | MTOPS | Medical Therapy of Prostatic Symptoms | 8 | 0 | 8 |
| 12 | ICDB | Interstitial Cystitis Data Base | 6 | 1 | 7 |
| 13 | LTD | Liver Transplantation Database | 6 | 0 | 6 |
| 14 | ATN | The Acute Renal Failure Trial Network | 5 | 0 | 5 |
| 15 | IBDGC | Inflammatory Bowel Disease Genetics Consortium | 4 | 0 | 4 |
| 16 | HALT-C | Hepatitis C Antiviral Long-term Treatment against Cirrhosis | 3 | 0 | 3 |
| 17 | LTD-Follow-up | Liver Transplantation Database Follow-up | 2 | 0 | 2 |
| 18 | NANS | National Analgesic Nephropathy Study | 2 | 0 | 2 |
| 19 | AALF | Adult Acute Liver Failure Triala | 0 | 2 | 2 |
| 20 | CKiD | Prospective Cohort Study of Kidney Disease in Children | 0 | 2 | 2 |
| 21 | BACH | Boston Area Community Health Study | 1 | 0 | 1 |
| 22 | PROBE | Prospective Database of Infants with Cholestasis | 0 | 1 | 1 |
| 23 | SISTEr | The Stress Incontinence Surgical Treatment Efficacy Trial | 1 | 0 | 1 |
| Total approved and pending requests | 188 | 31 | 219 |
Tabulation from NIDDK Central Repository Web site on 9 March 2011. The numbers in Table 1 reflect only approved external or pending requests not including requests for NIDDK ancillary studies or internal requests from members of study consortia.
aThe Web site for this study uses the acronym ‘ALF’. We use AALF and PALF to distinguish the adult and pediatric trials.