Table 1.
Studies included in the literature review, and checklist of features and measures
| Authors | Publication Year | Disease/Condition | Model/Theory | Caregiving Activities (ACT) | Caregiver Outcomes? (CG) | Recipient Outcomes? (CR) | All Three? | ACT/CG/CR1 Outcomes? |
|---|---|---|---|---|---|---|---|---|
| Akkerman, Ostwald et al. | 2004 | Dementia | √ | √ | CG | |||
| Albert, Im et al. | 2002 | TBI | √ | √ | √ | ACT/CG | ||
| Bakas, Farran et al | 2009 | Stroke | √ | √ | √ | CG/CR | ||
| Bank, Arguelles et al | 2006 | Dementia | √ | √ | ACT/CG | |||
| Beauchamp Irvine et al | 2005 | Dementia | √ | √ | √ | ACT/CG | ||
| Belle, Burgio et al | 2006 | Dementia | √ | √ | ACT/CG | |||
| Boerner, Schulz et al | 2004 | Alzheimer's | √ | √ | CG | |||
| Bourgeois, Schulz et al | 2002 | Dementia | √ | √ | ACT/CG | |||
| Burgio, Stevens et al | 2003 | Dementia | √ | √ | ACT/CG | |||
| Burns, Nichols et al | 2003 | Dementia | √ | CG | ||||
| Callahan, Boustani et al | 2006 | Alzheimer's | √ | √ | √ | CG/CR | ||
| Carneval, Anselmi et al | 2002 | Traumatic Brain Injury | √ | CG | ||||
| Carter | 2006 | Cancer | √ | CG | ||||
| Castro, Wilcox et al | 2002 | Dementia | √ | √ | √ | ACT/CG | ||
| Chee, Gitlin et al | 2007 | Alzheimer's | √ | CG | ||||
| Clark, Lester et al | 2000 | Multimorbidity | √ | √ | √ | ACT/CG | ||
| Clark, Rummans, et al | 2006 | Cancer | √ | CG | ||||
| Connell, Janevic et al | 2009 | Dementia | √ | √ | √ | ACT/CG | ||
| Coon, Thompson et al | 2003 | Dementia | √ | √ | CG | |||
| Corcoran, Gitlin et al | 2001 | Dementia | √ | CG | ||||
| Dellasega, Zerbe et al | 2002 | Frailty | √ | √ | √ | yes | ACT/CG/CR | |
| Devor, Renvall et al | 2008 | Dementia | √ | √ | ACT/CG | |||
| Dew, Goycoolea et al | 2004 | Heart | √ | √ | CG | |||
| Drentea, Clay et al | 2006 | Alzheimer's | √ | √ | ACT/CG | |||
| Eisdorfer, Czaja, et al | 2003 | Dementia | √ | √ | ACT/CG | |||
| Elliott, Brossart et al | 2009 | Spinal cord | √ | √ | CG | |||
| Elliott, Berry et al | 2008 | Spinal cord | √ | √ | √ | ACT/CG | ||
| Farran, Gilley et al | 2004 | Dementia | √ | CG | ||||
| Farran, Gilley et al | 2007 | Dementia | √ | √ | √ | √ | yes | ACT/CG/CR |
| Farran, Stafileno et al | 2008 | Dementia | √ | √ | CG | |||
| Finkel, Schulz et al | 2007 | Dementia | √ | √ | ACT/CG | |||
| Fortinski, Kulldorff et al | 2009 | Dementia | √ | √ | CG | |||
| Gallagher-Thompson, Coon et al | 2003 | Dementia | √ | √ | ACT/CR | |||
| Gallagher-Thompson, Gray et al | 2007 | Alzheimer's | √ | √ | √ | CG/CR | ||
| Gallagher-Thompson, Lovett et al | 2000 | Dementia | √ | √ | √ | √ | yes | ACT/CG/CR |
| Gant, Steffen et al | 2007 | Dementia | √ | √ | √ | yes | ACT/CG/CR | |
| Garand, Buckwalter et al | 2002 | Dementia | √ | √ | CG | |||
| Gaugler, Roth et al | 2008 | Alzheimer's | √ | CG | ||||
| Gerdner, Buckwalter et al | 2002 | Dementia | √ | √ | CR | |||
| Gitlin, Burgio et al | 2003 | Alzheimer's | √ | √ | √ | CG/CR | ||
| Gitlin, Corcoran et al | 2001 | Alzheimer's | √ | √ | √ | ACT/CR | ||
| Gitlin, Hauck et al | 2005 | Alzheimer's | √ | √ | √ | yes | ACT/CG/CR | |
| Gitlin, Hauck et al | 2006 | Dementia | √ | √ | √ | √ | yes | ACT/CG/CR |
| Gitlin, Reever et al | 2006 | Alzheimer's | √ | √ | √ | √ | yes | ACT/CG/CR |
| Gitlin, Winter et al | 2003 | Alzheimer's | √ | √ | √ | yes | ACT/CG/CR | |
| Gitlin, Winter, Burke et al | 2008 | Alzheimer's | √ | √ | √ | ACT/CG | ||
| Given, Given, Sikorskii et al | 2006 | Cancer | √ | √ | √ | ACT/CG | ||
| Gluekhauf, Sharma et al | 2007 | Dementia | √ | √ | ACT/CG | |||
| Gonyea, O'Connor et al | 2006 | Alzheimer's | √ | CR | ||||
| Grant, Elliot, Weaver et al | 2002 | Stroke | √ | √ | ACT/CG | |||
| Grant, McKibbin et al | 2004 | Dementia | √ | CG | ||||
| Haley, Bergman et al | 2008 | Dementia | √ | CG | ||||
| Haley, Gitlin et al. | 2004 | Alzheimer's | √ | √ | √ | ACT/CG | ||
| Hartke, King et al | 2003 | Stroke | √ | CR | ||||
| Hazel, McDonnell et al | 2004 | Schizophrenia | √ | √ | CR | |||
| Hendrix, Abernathy et al | 2009 | Cancer | √ | √ | ACT/CG | |||
| Hepburn, Lewis et al | 2003 | Dementia | √ | √ | √ | yes | ACT/CG/CR | |
| Hepburn, Lewis et al | 2007 | Dementia | √ | √ | √ | ACT/CG | ||
| Hepburn, Lewis, et al | 2005 | Alzheimer's | √ | √ | √ | √ | yes | ACT/CG/CR |
| Hepburn, Tornatore, et al | 2001 | Dementia | √ | √ | √ | CG/CR | ||
| Hilgeman, Burgio, et al | 2007 | Alzheimer's | √ | √ | √ | CG/CR | ||
| Holland, Courier et al | 2009 | Dementia | √ | √ | CG | |||
| Huyn-Hohnbaum, Villa et al | 2008 | Disability | √ | √ | CG | |||
| Jang, Lay et al | 2004 | Alzheimer's | √ | CG | ||||
| King, Baumann et al | 2002 | Dementia | √ | CG | ||||
| King, Hartke et al | 2007 | Stroke | √ | √ | √ | √ | yes | ACT/CG/CR |
| Kopelowicz, Zarate et al | 2003 | Schizophrenia | √ | √ | CG/CR | |||
| Korn, Logsdon, et al | 2009 | Dementia | √ | √ | CG/CR | |||
| Kuhn, Deleon et al | 2001 | Alzheimer's | √ | √ | √ | √ | yes | ACT/CG/CR |
| Kuhn, Fulton et al | 2004 | Alzheimer's | √ | √ | CG/CR | |||
| Kurtz, Kurtz et al | 2005 | Cancer | √ | √ | √ | CG/CR | ||
| Kwak, Salmon et al | 2007 | End-of-life | √ | √ | √ | CG/CR | ||
| Lenz, Perkins et al | 2000 | Heart | √ | √ | √ | CG/CR | ||
| Leutz, Capitman, et al | 2002 | Multimorbidity | √ | √ | √ | yes | ACT/CG/CR | |
| Logsdon, McCurry, et al | 2006 | Dementia | √ | √ | CG/CR | |||
| MacKenzie, Wiprzycka et al | 2007 | Multimorbidity | √ | √ | CG/CR | |||
| Mahoney, Mutschler et al | 2008 | Dementia | √ | √ | √ | √ | yes | ACT/CG/CR |
| Mahoney, Tarlow et al | 2003 | Dementia | √ | √ | √ | CG/CR | ||
| Martin-Cook, David et al | 2005 | Dementia | √ | √ | √ | yes | ACT/CG/CR | |
| McCurry, Gibbons et al | 2003 | Alzheimer's | √ | √ | CG/CR | |||
| McCurry, Gibbons et al | 2005 | Alzheimer's | √ | √ | CG/CR | |||
| McGinnis, Schulz et al | 2006 | Dementia | √ | √ | √ | CG/CR | ||
| McMillan, Small et al | 2006 | Cancer | √ | √ | √ | √ | yes | ACT/CG/CR |
| McMillan, Small et al | 2007 | Cancer | √ | √ | CR | |||
| Mittelman, Haley et al | 2006 | Alzheimer's | √ | CR | ||||
| Mittelman, Roth et al | 2007 | Alzheimer's | √ | CG | ||||
| Mittelman, Roth et al (J Psych) | 2004 | Alzheimer's | √ | √ | CG/CR | |||
| Mittelman, Roth et al (J Geron) | 2004 | Alzheimer's | √ | √ | CR | |||
| Nichols, Chang et al | 2008 | Dementia | √ | CR | ||||
| Northouse, Kershaw et al | 2005 | Cancer | √ | √ | √ | √ | yes | ACT/CG/CR |
| Ostwald, Hepburn et al | 2003 | Dementia | √ | √ | CG | |||
| Pasacreta, Barg et al | 2000 | Cancer | √ | √ | ACT/CG | |||
| Phillips | 2008 | Dementia | √ | √ | CG | |||
| Pillemer and Suitor | 2002 | Alzheimer's | √ | CG | ||||
| Powers | 2006 | Multimorbidity | √ | ACT | ||||
| Quayhagen, Corbeil et al | 2000 | Dementia | √ | CR | ||||
| Rabinowitz, Mausbach et al | 2006 | Dementia | √ | √ | ACT/CG | |||
| Rabinowitz, Mausbach, et al | 2007 | Dementia | √ | √ | √ | ACT/CG | ||
| Rexilius, Mundt et al | 2002 | Stem cell trans | √ | CG | ||||
| Rivera, Elliot et al | 2008 | Traumatic Brain Injury | √ | √ | √ | ACT/CG | ||
| Rose, Radciewicz et al | 2008 | Cancer | √ | √ | CG | |||
| Rose, Taylor et al | 2009 | Dementia | √ | √ | √ | ACT/CG | ||
| Roth, Mittleman et al | 2005 | Alzheimer's | √ | √ | √ | yes | ACT/CG/CR | |
| Schulz, Czaja et al | 2009 | Spinal cord | √ | √ | √ | CG/CR | ||
| Schwarz, Mion et al | 2008 | Stroke | √ | √ | √ | yes | ACT/CG/CR | |
| Smith, Toseland et al | 2006 | Frailty | √ | √ | ACT/CG | |||
| Stern, d"Ambrosio et al | 2008 | Driving Cessation | √ | √ | ACT/CG | |||
| Teri, Gibbons et al | 2003 | Alzheimer's | √ | √ | CR | |||
| Teri, McCurry et al | 2005 | Alzheimer's | √ | √ | √ | yes | ACT/CG/CR | |
| Tompkins, Bell, 2009 | 2009 | Dementia | √ | √ | CG/CR | |||
| Toseland, Smith et al | 2006 | Alzheimer's | √ | CR | ||||
| Tremont, Davis et al | 2008 | Dementia | √ | √ | √ | √ | yes | ACT/CG/CR |
| Vickrey, Mittman et al | 2006 | Dementia | √ | √ | √ | yes | ACT/CG/CR | |
| Waelde, Thompson et al | 2004 | Dementia | √ | √ | √ | yes | ACT/CG/CR | |
| Walsh, Martin et al | 2004 | Cancer | √ | √ | CG/CR | |||
| Walsh, Radcliff et al | 2007 | Cancer | √ | √ | √ | CG/CR | ||
| Walsh, Schmidt et al | 2003 | Cancer | √ | √ | √ | √ | yes | ACT/CG/CR |
| Weuve, Boult et al | 2000 | High risk | √ | √ | CG/CR | |||
| Winter, Gitlin et al | 2007 | Dementia | √ | √ | CG/CR | |||
| Wolff, Rand-Giovannetti et al | 2009 | End-of-life | √ | √ | √ | CG/CR | ||
| Won, Fitts et al | 2008 | Disability | √ | √ | √ | CG/CR |
Note: 1. ACT = caregiver activities; CG = caregiver outcomes; CR = Care recipient outcomes.