Table 1.

Trial outcome measures and instruments: baseline, 6, 24 and 36 weeks

Participant	Outcome measure	Instrument
Person with Parkinson's	Parkinson's disability/general activities	Self Assessment Parkinson's Disease Disability Scale [46] (PRIMARY OUTCOME)
	Parkinson's specific	Parkinson's Disease Questionnaire [47]
		Non Motor Symptom Questionnaire [48]
	Mobility	Posture and gait items from the Unified Parkinson's Disease Rating Scale [49]
		Timed up and go [50]
	Falls	Self report
	Speech	Single speech item from the Unified Parkinson's Disease Rating Scale [49]
		Abridged Emerson and Enderby Screening Assessment Rating Scale [51]
		Frenchay Dysarthria Summary [52]
		Speech self report questionnaire [10-12]
	Pain	Visual analogue scale [53]
	Generic health related quality of life/QALYs	Euro Qol 5D, with utility index for calculation of quality adjusted life years (QALYs) [54]
	Self efficacy	Self efficacy scale [55]
	Health and social care utilisation	Customised proforma and patient records
Live-in carer	Carer strain	Modified caregiver strain index [56] (PRIMARY OUTCOME)
	General health	General health questionnaire - 12 [57]
Both	Activities of daily living	Barthel ADL index [58]
	Social activities	Frenchay Activities index [59]
	Psychological wellbeing	Hospital Anxiety and Depression Scale [60]
		Yale single item depression screening tool [61]
	Generic health related quality of life	Short form - 36 Health Survey [62]