Alaska Native Knowledge Network 2000 |
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Guidelines for Respecting Cultural Knowledge |
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IPR and research rules (beneficence, protocol reviews); research
involving Aboriginal Peoples; First Nations Code of Ethics pamphlet |
American Anthropological Association 1998 |
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Code of Ethics of the American Anthropological Association |
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Informed consent, working relationships, respect |
American Indian Law Center, Inc. 1999 |
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Model Tribal Research Code |
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Common pitfalls; Indian Health Service IRBs; research protocol review;
benefits, rights, and enforcement |
Australian Institute of Aboriginal and Torres Strait Islander Studies
1999 |
|
Guidelines for Ethical Research in Indigenous Studies |
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Principles of ethical research in Indigenous studies; practical
applications, such as full and equal participation, affecting
livelihoods, maintaining culture and heritage |
Canadian Institutes for Health Research 2007 |
|
CIHR Guidelines for Health Research Involving Aboriginal People |
|
Guidelines in conducting ethical and culturally competent research
involving Aboriginal peoples |
Desert Knowledge Cooperative Research Centre 2009 |
|
DKCRC Aboriginal Knowledge and Intellectual Property Protocol Community
Guide |
|
Intellectual property negotiation using Aboriginal paintings; ethics,
confidentiality, free prior informed consent, benefit sharing, and
research findings; reporting and publishing; protocols and research
checklists |
Freeman 2004 |
|
The Protection of Potential Individual Volunteers and Tribal Communities
in Research Involving the Indian Health Service |
|
Indian Health Service policies to protect participants and tribal
communities; IRB composition; approval of research and publications by
tribal communities; tribal informed consent |
Hansen and VanFleet 2003 |
|
Traditional Knowledge and Intellectual Property: A Handbook on Issues
and Options for Traditional Knowledge Holders in Protecting Their
Intellectual Property and Maintaining Biological Diversity |
|
Unpublished information and intellectual property of Tribes; patent
process for native plants; publication ethics |
Indian Health Service 2006; U.S. DHHS 2005 |
|
Human Research Participant Protection in the Indian Health Service |
|
Indian Health Service IRB requirements; implications for 45 CFR 46
(Title 45, Code of Federal Regulations part 46), the Belmont Report, and
the instructions of the Indian Health Service IRB(s) with
jurisdiction |
Indigenous Peoples Council on Biocolonialism 2000 |
|
Indigenous Research Protection Act |
|
Legal protection for tribes in ownership of research; includes a model
academic research agreement |
International Society of Ethnobiology 2006 |
|
ISE Code of Ethics |
|
Framework for decision making and conduct for ethnobiological research
and related activities; code of ethics |
Louis and Grossman 2009 |
|
Discussion Paper on Research and Indigenous Peoples, Association of
American Geographers |
|
Indigenous knowledge and intellectual property; revision of drafts and
findings by tribes |
Macaulay 1994 |
|
Ethics of research in Native communities |
|
Benefits of the research to the community; ownership of data and
publication issues |
Macaulay 1998 |
|
Participatory research with Native community of Kahnawake creates
innovative code of research ethics |
|
Code of research ethics regarding ownership of data |
Maddocks 1992 |
|
Ethics in Aboriginal research: a model for minorities or for all? |
|
Ownership of data and publication; communication of results |
National Science Foundation 2004a |
|
Guidelines for Improved Cooperation between Arctic Researchers and
Northern Communities |
|
Guidelines for Arctic residents to shape research; consideration of
subsistence lifestyles; includes checklist |
National Science Foundation 2004b |
|
Principles for the Conduct of Research in the Arctic |
|
Principles for researchers in a broad spectrum of academic fields when
conducting research in Arctic or northern regions |
Navajo Nation 1996 |
|
Navajo Nation Human Research Code |
|
Protections for Navajo people; conditions for physicians, researchers,
and others doing research within the Navajo Nation |
NCAI Policy Research Center 2010 |
|
Research That Benefits Native People: A Guide for Tribal Leaders |
|
Five-module curriculum; research review policies and boards; selecting
suitable research partners; applying values and ethics; understanding
program evaluation |
Quigley 2001 |
|
Compilation on environmental health: research ethics issues with Native
communities |
|
Partnership guidelines when working with indigenous communities |
Sahota 2007 |
|
Research Regulation in American Indian/Alaska Native Communities: Policy
and Practice Considerations |
|
Ethical and legal considerations for American Indian/Alaska Native
communities in regulation of research; American Indian/Alaska Native
models of research ethics; legal justifications for American
Indian/Alaska Native governments to regulate research |
Sharp and Foster 2002 |
|
Community involvement in the ethical review of genetic research: lessons
from American Indian and Alaska Native populations |
|
Benefits and challenges of directly involving communities in the ethical
review of research |
World Health Organization 2010 |
|
Indigenous People and Participatory Health Research: Planning and
Management, Preparing Research Agreements |
|
Issues covered by a research agreement and examples of forms to be used
with indigenous communities for an agreement, collective consent,
informed consent |
|