Table 1.
Categories of principles | MCHB [12] | Institute for Patient- and Family-Centered Care (IPFCC) [13] | AAP [2] and IPFCC Joint statement | Cronin/Shaller [90] | Common principles |
---|---|---|---|---|---|
Information sharing | Open and objective communication and information sharing | Information sharing: complete and unbiased information sharing that is “affirming and useful” | Sharing honest and unbiased information in ways “useful and affirming” | Free flow and accessibility of information | Open and objective information sharing between families and providers |
Respect and honoring differences |
All respect the skills and expertise brought to relationship Honors cultural diversity and family traditions |
Dignity and respect: honor patient and family perspectives and choices, including knowledge, values, beliefs, and cultural backgrounds |
Respecting each child and his or her family Honoring racial, ethnic, cultural, and socioeconomic diversity, and its effect on families experience and perception of care Recognizing and building on strengths of child and family |
Respect for patient needs and preferences Sensitivity to nonmedical and spiritual dimensions |
Mutual respect for family preferences, skills, and expertise Sensitivity to cultural and spiritual dimensions |
Partnership and collaboration |
Families and professionals work together in best interests of child and family, with child assuming a partnership role as s/he grows; there is an individual and developmental approach Partnership between families and professional is the foundation of FCC |
Participation: patients and families encouraged and supported in participating in care and decision making at the level they choose |
Collaborating with families at all levels of health care, in the care of child, professional education, policy making, and program development Support and facilitate choice about approaches to care and support Providing/ensuring formal and informal support for patient and family at all ages |
Collaboration and team management Education/shared knowledge |
Partnership and collaboration in decision making, meeting the the needs, strengths, values, and abilities of all Decisions are made including families at the level they choose |
Negotiation |
Participants make decisions together There is a willingness to negotiate Trust is acknowledged as fundamental |
Empowering families to discover their own strengths, build confidence, and make choices and decisions about their health | Involvement of family and friends | Partnership and collaboration between team members | |
Care in context of family and community |
Develops policies, practices, and systems that are family-friendly/centered in all settings Recognizes importance of community-based services |
Collaboration: patients and families included on an institution-wide basis on program development, implementation and evaluation, facility design, and professional education | Flexibility in organization policies, procedures, and practices so services can be tailored to needs, beliefs, and cultural values of child and family | Incorporation of families at all levels of care, including encounter, institution, and policy settings |