Table 7. Reportable events within the COHORT study by group, 2006–2009.
Groups that carry an expanded allele | Groups that do not carry an expanded allele | |||||
Individuals with clinically diagnosed HD[n = 930] | First-degree relatives who pursued genetic testing and carry an expanded allele[n = 248] | First-degree relatives who did not pursue genetic testing and carry an expanded allele[n = 112] | First-degreerelatives who did not pursue genetic testing and do not carry an expanded allele[n = 224] | First-degree relatives who pursued genetic testing and do not carry an expanded allele[n = 41] | Spousesand caregivers[n = 430] | |
Suicide [n (%)] | 1 (0.1) | 0 | 0 | 0 | 0 | 0 |
Suicide attempt [n (%)] | 9 (1.0) | 2 (0.8) | 0 | 0 | 0 | 0 |
Deaths other than suicide [n (%)] | 18 (1.9) | 1 (0.4) | 0 | 0 | 0 | 0 |
Premature withdrawal [n (%)] | 29 (3.1) | 4 (1.6) | 0 | 4 (1.8) | 0 | 13 (3.0) |
COHORT = Cooperative Huntington Observational Research Trial; HD = Huntington disease.