Table 6.
Self management and Participation (according to parents)
| 0-4 year | 4-12 year | 12-18 year | Total | |||||
|---|---|---|---|---|---|---|---|---|
| n | (%) | n | (%) | n | (%) | n | (%) | |
| Total | 12 | (100) | 62 | (100) | 32 | (100) | 106 | (100) |
| Self management | ||||||||
| Daily medication use | ||||||||
| 0 CAH med. | 0 | - | 4 | (6) | 2 | (6) | 6 | (6) |
| 1 CAH med. | 0 | - | 7 | (11) | 6 | (19) | 13 | (12) |
| 2 CAH meds. | 9 | (75) | 29 | (47) | 11 | (34) | 49 | (46) |
| 3 CAH meds. | 3 | (25) | 22 | (36) | 13 | (41) | 38 | (36) |
| Medication at fixed time | 11 | (92) | 53 | (85) | 24 | (75) | 88 | (83) |
| Increased medication in past 12 months? | ||||||||
| 0 times | 0 | - | 3 | (5) | 5 | (16) | 8 | (7.5) |
| 1-10 times | 11 | (92) | 43 | (69) | 19 | (59) | 73 | (69) |
| > 10 times | 1 | (8) | 11 | (18) | 5 | (16) | 17 | (16) |
| Unknown | 0 | - | 5 | (8) | 3 | (9) | 8 | (7.5) |
| Participation | ||||||||
| Contact with school because of problems | n/a | - | 22 | (35) | 8 | (25) | 30 | (32) |
| Child exercises as much as peers without CAH | n/a | - | 41 | (66) | 22 | (69) | 63 | (67) |
| Child engages in a sport | n/a | - | 46 | (74) | 31 | (97) | 77 | (82) |
n/a = not applicable