Table 3.

Items Caregivers Reported Feeling Uncomfortable Answering

Item	Number of Caregivers Expressing Difficulty Answering Item/Number of Caregivers Answering Item	Selected Caregiver Quotes
Asthma Impact Items
My child's chest felt tight because of asthma.	2/5	"...she has never said anything directly to me so I had to guess"
My child got tired easily because of his/her asthma.	1/5	" I don't see her at school when she would be running around"
My child's body felt bad when he/she was out of breath.	1/5	" I don't know how his body felt, son didn't tell me how his body felt."
Emotional Distress Items
My child worried about what could happen to him/her.	2/5	"My child doesn't always share his emotions with me."
My child got scared really easily.	1/5	"It is harder to ascertain my child's feelings"
My child felt alone.	1/5	"This was hard to answer because if she didn't tell me I wouldn't know."
My child was worried when he/she was away from home.	2/5	"It's not so much the wording it's that you're asking me to report something that I don't know"
Being sad made it hard for my child to do things with friends.	1/5	"I couldn't relate to questions about my child's feelings because I have no idea."
Fatigue Items
My child was so tired it was hard for him/her to pay attention.	1/5	" I just answered to the best I could. I'm not always there when she would need to pay attention like at school"
Pain Items
It was hard for my child to think when he/she had pain.	2/5	"I cannot measure/gage if he can think when he has pain as he may not tell me"
It was hard for my child to remember things when he/she had pain.	1/5	"I don't know what he's thinking when he has pain."
Social Role Relationship Items
My child was good at making friends.	2/5	"The friends piece comes at school and I'm not there"
It was hard for my child to make friends.	2/5	"I have no idea about things that occur at school or after- school that I can't see. These are questions about things that I haven't seen with my own eyes."
Other kids teased my child.	1/5	"I'm not at school to see this"
Other kids did not want to be my child's friend.	2/5	"These are things that are internal that I can't see as a parent"
Other kids bullied my child.	1/5	"... if he doesn't talk about it or I don't see it happen... then I don't know""
My child was good at making friends.	2/5	"Anything that I'm able to observe is a lot easier to answer (vs. questions about how my child feels)."
My child felt accepted by other kids his/her age.	1/5	"I don't have a gauge to know how he felt. I have to guess"
Other kids did not want to be my child's friends.	2/5	"Some questions were harder due to difficulty knowing how to answer on behalf of child's experience "
My child was able to have fun with his/her friends.	1/5	"this question was a little harder-I had to think about whether she had fun since I'm not always with her"
My child was able to count on his/her friends.	1/5	"I had to think again about what she has told me."
My child treated other kids his/her age with respect.	1/5	"This was a little harder to answer- because I'm not around her when she's around other kids."
Other kids did not like my child.	1/5	"This was harder to answer because I am not around my child at school."
My child felt nervous when he/she was with other kids the same age.	2/5	"I'm not sure what she is like when she is around other kids."
Other kids wanted to be with my child.	2/5	"This is hard to answer because I'm not around her during the school day."
Other kids wanted to be my child's friend	1/5	"With an older teenager it's a little more difficult to know."
Other kids were mean to my child.	1/5	"It depends on whether the child tells the parents or if I observed it directly."
My child teased other kids.	1/5	"It was impossible to know about other kids since I wasn't there."
My child played alone and kept to himself/herself.	1/5	"I thought of it as "at our house". Because in school, Sunday school, etc. I do not have the foggiest idea."