TABLE 1.
Suggested Changes to the Original Items by Respondents and Congruence Between Parent and Child Responses to the Original Items
| Parent Prediction of Child Response, (%) | Child Response, (%) | |
|---|---|---|
| Do you understand fertility?a | 86 | 100 |
| One day I would like to have a baby.b | 71 | 93 |
| If I cannot have a baby in the future, I will be sad.b | 50 | 29 |
| Disappointeda | 7 | 36 |
| Open-endeda | 43 | 29 |
| I feel frustrated that I might not be able to have a baby in the future.b | 21 | 7 |
| Sada | 29 | 7 |
| Disappointeda | 14 | 50 |
| Open-endeda | 14 | 7 |
| Othera | 14 | 29 |
| I feel like I have control over my fertility.b | 21 | 29 |
| I feel like I can talk to my parents about fertility.b | 100 | 64 |
| I have talked to my parents about fertility.a | 86 | 71 |
| If I cannot have a baby, I would blame the illness/cancer.b | 79 | 43 |
| If I cannot have a baby, I would blame the doctor.b | none | none |
| I am satisfied with the information I received about my future fertility.b | 79 | 42 |
| Do you want to know the impacts of your treatment on your fertility?a | 71 | 79 |
| I am worried about having a baby in the future because I might get cancer again.b | 29 | 57 |
| I am worried about having a baby in the future because my baby might get cancer.b | 43 | 71 |
| Worried baby will have treatment defects?a | 4 | 11 |
| Would you consider adoption?a | 14 | 21 |
a
Represent participants’ suggested changes to the items.
b
Represent the original 10 HRQoL items.