Table 1. Knowledge and experience of California neurologists, pathologists, and neuropathologists in diagnosing Creutzfeldt-Jakob disease (CJD).
Characteristic | Neurologists n/N (%) | Pathologists n/N (%) | Neuropathologists n/N (%) |
---|---|---|---|
Have evaluated a case of CJD | 212/310 (68) | 56/259 (22) | 18/33 (55) |
Median no. (range) of CJD cases evaluated | 3 (0–30) | 2 (0–30) | 10 (0–50) |
Type of practice | |||
Private practice/private hospital | 144/308 (47) | 122/278 (44) | 8/33 (25) |
Outpatient HMOa/managed care | 55/308 (18) | – | – |
Community hospital/clinic | 1/308 (<1) | 68/278 (24) | 4/33 (12) |
University affiliated | 82/308 (27) | 37/278 (13) | 10/33 (30) |
Veterans hospital | 13/308 (4) | 3/278 (1) | 1/33 (3) |
County medical examiner or coroner | – | 7/278 (3) | 2/33 (6) |
Other | 15/308 (5) | 41/278 (15) | 5/33 (15) |
Can recognize the clinical or pathologic features of classic CJD | 255/307 (83) | 96/273 (35) | 25/28 (89) |
Can recognize the clinical or pathologic features of variant CJD | 120/305 (39) | 40/274 (15) | 18/28 (64) |
Have not considered arranging for an autopsy for CJD patients under their care | 74/207 (36) | – | – |
Pathology group available at facility to perform autopsy on suspect CJD cases | 223/297 (75) | 74/259 (29) | 17/28 (61) |
Pathology group available at facility to confirm diagnosis of suspect CJD with histopathologic analysis | 223/297 (75) | 91/254 (36) | 18/27 (67) |
aHMO, health maintenance organization.