Awareness that pediatric patients entering the adult healthcare system for the first time may not be fully prepared or aware of the differences between the two systems |
Collaboration with the pediatric gastroenterologist and team prior to the actual “transfer” of care. Examples: participation in transition clinic, information sessions |
Anticipate questions from patients about IBD, treatment plans and impact on body image, and sexual health |
Educate the patient in understanding the adult health care system |
For newly transferred patients the first few visits may require longer appointment times. |
Anticipate that parents may want to continue to have a key role in their child’s care and that patients may not be able to provide the complete medical history without their parents input. Although the goal is for patients to take on responsibility for their own care the process may be gradual. |