Table 1. BIID manifestations as self-reported in questionnaires in BIID individuals.
| Amputation (n = 30) | Paralysation (n = 24) | Total (n = 54) | |
| Age of onset (mean – range) | 7.0 (3–12) | 6.3 (3–15) | 6.7 (3–15) |
| Females (biological sex) (n – (%)) | 3 (10.0) | 7 (29.2) | 10 (18.5) |
| Site (n – (%)) * | Left 11 (36.7) | Left 0 (0.0) | Left 11 (20.4) |
| Right 9 (30.0) | Right 0 (0.0) | Right 9 (16.7) | |
| Bilateral 10 (33.3) | Bilateral 24 (100.0) | Bilateral 34 (63.0) | |
| Change site over time (n – (%)) | 10 (33.3) | 5 (20.8) | 15 (27.8) |
| Presence (n – (%)) | |||
| -Always | 14 (46.7) | 8 (33.3) | 22 (40.7) |
| -Sometimes limited | 13 (43.3) | 13 (54.2) | 26 (48.1) |
| -Sometimes absent | 3 (10.0) | 3 (12.5) | 6 (11.1) |
| Body modification (n – (%)) | |||
| Ever thought of it | 27 (90.0) | 20 (83.3) | 47 (87.0) |
| Ever tried myself | 10 (33.3) | 6 (25.0) | 16 (29.6) |
| Consulted physician | 12 (40.0) | 4 (16.7) | 16 (29.6) |
| Modification is performed | 7 (23.3) | - | 7 (13.0) |
*
3 left under knee amp; 8 left above knee amp; 7 right above knee amp; 1 right under knee amp; 6 bilateral above knee amp; 2 bilateral under knee amp; 1 right above elbow amp; 1 bilateral above elbow amp; 1 tetra amputation; 18 lower back paralysation; 1 spastic paraperesis of legs; 1 lower back paralysation and left below elbow amp; 1 paralysis starting at thighs; 2 partial lower back paralysation; 1 clubfeet.