Table 5.

Valuation of benefits and harms

Child's perspective				Parents' perspective
	Pompea	neutral	pb		Pompe	neutral	p
false positive scenario
effect on child 1st yearc	3.47	3.29	0.205	harm to parents	2.05	1.96	0.371
effect on child lifetimec	3.60	3.50	0.502
late-onset scenario
effect on child 1st yearc	3.57	3.44	0.444	harm to parents	1.93	1.73	0.029
effect on child lifetime	3.93	3.47	0.017
harm to childd	2.41	2.18	0.011

^a mean scores; measures of effect scaled 1-5, measures of harm scaled 1-3, with harm at the low end and benefit at the high end of each scale. Items in this table had between 4 and 9 missing values

^b chi square test for trend

^c exact chi square test for trend

^d '(e.g. discrimination)'