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. Author manuscript; available in PMC: 2013 May 1.
Published in final edited form as: Acad Pediatr. 2012 Mar 28;12(3):181–188. doi: 10.1016/j.acap.2012.02.001

Table 2.

Overall Study Themes for Leave-Taking by Parents of Newborns and Parents of Children with Special Health Care Needs (CSHCN) (n=40)

Themes Parents of Newborn Parents of CSHCN
(1) Importance of pre-
planning for family leave
Reported adequate time to gather
and evaluate family leave options;
proactive
Reported lack of time to plan,
gather, or evaluate family leave
options; reactive
(2) Difficulties in accessing
and understanding
information about family
leave benefits
Used multiple sources to gather
information; cited employers as
influential but often unhelpful

Information about eligibility and
benefits was difficult to
understand
Used multiple sources to gather
information; cited employers,
family, and friends, all of whom
were often unhelpful

Information about eligibility and
benefits was difficult to
understand, especially given lack
of time
(3) Limitations of family
leave benefits
Limited benefit eligibility (e.g.,
length of time with employer,
company size)

Limited benefit provision (e.g., job
protection, pay)
Limited benefit eligibility (e.g.,
length of time with employer,
company size)

Limited benefit provision (e.g., job
protection, pay)
(4) Potential importance of
people who understand
what is involved in caring for
newborns or CSHCN (i.e.,
healthcare providers) in
helping navigate these
barriers
Need for more accurate
information in lay language

Preference for information from
advocates who understand
newborn needs
Need for more accurate and
timely information in lay language

Preference for timely information
from advocates who understand
CSHCN needs