Table 2.
Themes | Parents of Newborn | Parents of CSHCN |
---|---|---|
(1) Importance of pre- planning for family leave |
Reported adequate time to gather and evaluate family leave options; proactive |
Reported lack of time to plan, gather, or evaluate family leave options; reactive |
(2) Difficulties in accessing and understanding information about family leave benefits |
Used multiple sources to gather information; cited employers as influential but often unhelpful Information about eligibility and benefits was difficult to understand |
Used multiple sources to gather information; cited employers, family, and friends, all of whom were often unhelpful Information about eligibility and benefits was difficult to understand, especially given lack of time |
(3) Limitations of family leave benefits |
Limited benefit eligibility (e.g., length of time with employer, company size) Limited benefit provision (e.g., job protection, pay) |
Limited benefit eligibility (e.g., length of time with employer, company size) Limited benefit provision (e.g., job protection, pay) |
(4) Potential importance of people who understand what is involved in caring for newborns or CSHCN (i.e., healthcare providers) in helping navigate these barriers |
Need for more accurate information in lay language Preference for information from advocates who understand newborn needs |
Need for more accurate and timely information in lay language Preference for timely information from advocates who understand CSHCN needs |