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. Author manuscript; available in PMC: 2013 Jun 1.
Published in final edited form as: Am J Transplant. 2012 May 8;12(6):1486–1495. doi: 10.1111/j.1600-6143.2012.04080.x

Table 2.

Description of Survey Instruments Used to Measure Patient Symptoms And Quality of Life

Survey Instrument Publisher Description Measures Score Range
General Health Questionnaire N/A
Short Form 36 Quality Metric Inc. Includes 8 subscales which are then used to derive physical and Mental Summary Scores Generic Health related quality of life 0–100
Short Form 6D Health Utility using 6 domains from the SF 36 Calculated health utility 0–1
PedsQL™ 4.0 Generic Core Scale Mapi Research Trust Developed for use in patients regardless of health status. May be used to compare to healthy groups of children or across different diseases. Now validated for use up to age 25 Generic Health related quality of life 0–100
PedsQL™ Cognitive Functioning Scale Mapi Research Trust Developed as part of the Multidimensional Fatigue Scale. Cognitive functioning 0–100
PedsQL™ Transplant Module Scale Mapi Research Trust Developed to include health domains unique to transplant recipients Health related quality of life specific to solid organ transplant recipients 0–100