Table 3.

Questions patients most wanted (>60%) to ask from the QPL-CT and asked (N=25)

Question	Wanted to ask and asked (Y/Y) (%)
7 What is already known about the treatment’s success?	6/12 (50.0%)
13 What are the risks of taking the new treatment??	7/9 (77.8%)
11 Has the benefit of the new treatment been proven in people like me	5/17 (29.4%)
23 If the treatment is beneficial how can I get it,	9/17 (52.9%)
21 How long has the trial been going on? Are there any concerns about the trial?	10/17 (58.8%)
18 How often will I need to come in for treatment? Is that different from standard?	8/12 (66.6%)
26 Will I know what treatment I am getting, or is the trial blinded?	5/16 (31.2%)
2 Why are you offering me this particular trial?	2/8 (25.0%)
1 What is the usual (standard) treatment for people in my situation?	3/5 (60.0%)
4 What other trials am I eligible for? What makes me eligible (or not)?	5/10 (50.0%)
32 If I join the trial will I be losing out on any new treatment opportunities	3/11 (27.3%)
33 Can I have alternative therapies if I go on the trial?	5/16 (31.3%)
5 How can I learn more about the trial?	3/14 (21.4%)
20 Is the new treatment only available through joining in the trial?	1/12 (8.3%)