Table 4.

Questions most participants (> 60%) wanted ask from the QPL-CT and did not ask, wanted to ask and did ask, and Did not ask as the oncologist had mentioned. (N = 25)

Question	Wanted to ask and did not (%)	Wanted to ask and did (%)	Physician mentioned (%)
24 How will the results of the trial be used?	100.0	0	0.0
10 If I join this trial how might others benefit?	91.7	0	8.3
17 If I enter the clinical trial, will it require me to have extra tests, to attend more clinics and will it cost me extra money? (extra parking, extra medication?)	84.6	15.4	0.0
12 (If doctor describes response to treatment) What does response rate mean? How long would a response last?	78.6	14.3	7.1
16 If I get a side effect or injury because of being in the trial, will I get compensation?	77.8	22.2	0.0
22 Apart from the hospital staff, will other people have access to my medical records?	77.8	11.1	11.1
28 Is there a payment made by the trial sponsor/company to the hospital or to you as my doctor if I go on this trial?	77.8	22.2	0.0
5 How can I learn more about the trial? Can I speak to someone who is already participating on the trial?	73.3	20.0	6.7
20 Is the new treatment only available through joining in the trial?	73.3	6.7	20.0
15 Whom can I call if something goes wrong?	69.2	7.7	23.1
29 Will you still treat me if I decide not to go on the trial?	69.2	23.1	7.7
33 Can I have alternative therapies if I go on the trial?	68.8	31.3	0.0
25 Is this trial randomized? What does that mean and why is it important?	63.6	18.2	18.2
31 If I join the trial, but later change my mind, how can I stop?	63.6	27.3	9.1
11 Has the benefit of the new treatment been proven in people like me?	60.0	25.0	15.0