Table 1.
Participant characteristics within each study
| Pilot interviews (%) | Web survey (%) | Follow-up interviews (%) | |
|---|---|---|---|
| Highest degree | |||
| MD | 7 (50.00) | 21 (26.25) | 4 (33.33) |
| PhD | 5 (35.71) | 38 (47.50) | 7 (58.33) |
| MD-PhD | 2 (14.29) | 3 (3.75) | 1 (8.33) |
| Othera | 0 (0.00) | 9 (11.25) | 0 (0.00) |
| Missing | 0 (0.00) | 9 (11.25) | 0 (0.00) |
| Role in studyb | |||
| PI/Co-PI | 14 (100.00)c | 33 (41.25) | 9 (75.00) |
| Coinvestigator | 0 (0.00) | 21 (26.25) | 3 (25.00) |
| Other team member | 0 (0.00) | 18 (22.50) | 0 (0.00) |
| Other role | 0 (0.00) | 8 (10.00) | 0 (0.00) |
| Affiliation | |||
| Medicine | (Not asked) | 48 (60.00) | 7 (58.33) |
| Dentistry | 5 (6.25) | 3 (25.00) | |
| Public health | 8 (10.00) | 1 (8.33) | |
| Other/unspecified | 9 (11.25) | 1 (8.33) | |
| Missing | 10 (1.25) | 0 (0.00) | |
| Database size (number of individual donors) | |||
| 1–100 donors | (Not asked) | 25 (31.25) | 3 (25.00) |
| 101–1000 donors | 22 (27.50) | 1 (8.33) | |
| 1001–5000 donors | 15 (18.75) | 5 (41.67) | |
| >5000 donors | 3 (3.75) | 2 (16.67) | |
| Missing | 15 (18.75) | 1 (8.33) | |
| Total | 14 (100.00) | 80 (100.00) | 12 (100.00) |
The values are represented as frequency (%). Percentages may not total to 100 due to rounding.
a
“Other” degree included RN, MS, MPH, and BS.
b
Or role with greatest responsibility for the study when more than one role is mentioned.
c
Participants in the pilot interviews were all PIs since the sample was taken from the CRISP database.
PI, Principal Investigator.