TABLE 1.
Demographic and Clinical Characteristics for CWE and Their Parents (N = 277 Dyads)
| Children demographics and clinical characteristics | |
| Female, n (%) | 129 (46.6) |
| Age of epilepsy onset, mean (SD); range, y | 4.4 (2.6); <1–9 |
| Age of epilepsy diagnosis, mean (SD); range, y | 5.1 (2.5); <1–11 |
| Age at CHQ administration, mean (SD); range, y | 13.0 (2.6); 8–17 |
| Education level at CHQ administration, n (%) | |
| Preschool to 5th grade | 67 (24.5) |
| 6th–8th grade | 107 (39.2) |
| 9th–12th grade | 99 (36.3) |
| Seizure-free for ≥5 y, n (%) | 177 (63.9) |
| Currently taking AEDs, n (%) | 87 (31.4) |
| Complicated epilepsy, n (%)a | 53 (19.1) |
| Full-scale IQ ≥ 80, n (%)b | 230 (83.0) |
| Normal neurologic examination, n (%)c | 232 (83.8) |
| Normal brain MRI, n (%)c | 232 (89.2) |
| Parent-respondent demographics | |
| Female, n (%) | 252 (91.0) |
| Age, mean (SD); range, y | 42.5 (5.4); 27–58 |
| Race, n (%) | |
| White | 222 (80.4) |
| Black | 33 (12.0) |
| Otherd | 21 (7.6) |
| College education or higher, n (%) | 119 (43.1) |
| Employed full- or part-time, n (%) | 216 (78.3) |
| Married, n (%) | 198 (71.7) |
| Biological parent, n (%) | 265 (95.7) |
Missing data from child education (2 children graduated high school and 2 children were in vocational school), 1 missing from parent race, parent education, parent employment, and parent marital status.
a
“Complicated” was defined by history of remote symptomatic epilepsy or epileptic encephalopathy (Dulac59).
b
At the 8- to 9-year follow-up.
c
At baseline or 8- to 9-year follow-up.
d
Includes Hispanic, Asian, and other.