Table 1. Demographic characteristics of parents who accepted or declined Duchenne muscular dystrophy screening for their sons and of providers who completed a questionnaire.
| Characteristic | Participant (n = 138*) | Decliner (n = 22)* | Provider (n = 25)* |
|---|---|---|---|
|
Race, n (%)
Black or African American White Other |
18 (13.2) 108 (79.4) 10 (7.4) |
3 (13.6) 16 (72.7) 3 (13.6) |
4 (18.2) 17 (77.3) 1 (4.5) |
|
Ethnicity, n (%)
Hispanic or Latino Non-Hispanic or non-Latino |
5 (3.7) 131 (96.3) |
0 (0) 22 (100) |
0 (0) 22 (100) |
|
Relationship to child, n (%)
Mother Father Other |
120 (88.2) 15 (11.0) 1 (1.7) |
20 (90.9) 2 (9.1) 0 (0) |
|
|
Marital Status, n (%)
Married Not married |
125 (91.9) 11 (8.0) |
18 (94.7) 1 (5.3) |
|
|
Education, n (%)
4-year college graduate Post-graduate study Other |
47 (35.1) 74 (55.2) 13 (9.7) |
10 (52.6) 9 (47.4) 0 (0) |
|
|
Sex, n (%)
Male Female |
5 (22.7) 17 (77.3) |
||
|
Role, n (%)
Physician Nurse Other |
7 (31.8) 9 (40.9) 6 (27.2) |
||
| Years in practice, mean (range) | 15.7 (2-37) | ||
| *Total n varies for each characteristic due to missing responses. | |||