Table 3. Questions and respondent answers used to evaluate parents’ perceived usefulness of the information they received and their knowledge of Duchenne muscular dystrophy screening.
Question - Information received | Answer | % |
---|---|---|
Were you given any written information about screening for DMD? (n = 138) | Yes No Don't know/Don't remember |
94.9 0.7 4.3 |
Did you feel you had enough time to read the written information? (n = 130) | Yes No Don't Know/Don't remember |
78.5 17.7 3.8 |
How well did you understand the written information about DMD screening? (n = 125) | Very well/Well/Well enough Not well/Not at all |
96.8 3.2 |
How helpful was the written information when deciding to have your son screened? (n = 128) | Very/Somewhat helpful Neutral Not very/Not helpful at all |
68.8 24.2 7.0 |
Did anyone talk to you about the written information for screening? (n = 138) | Yes No Don't Know/Don't remember |
90.6 4.3 5.1 |
How helpful was this person in explaining screening for DMD? (n = 123) | Very/Somewhat helpful Neutral Not very/Not helpful at all |
94.3 4.1 1.6 |
Did this person give you enough time to ask questions about DMD screening? (n = 124) | Yes No Don't know/Don't remember |
92.7 1.6 5.6 |
Question - Knowledge (n = 135) | Correct Answer | % |
DMD is: | The most common form of muscular dystrophy | 63.0 |
DMD is a genetic condition that weakens the: | All of the above (arm and leg, heart, and breathing muscles) | 40.7 |
DMD can happen: | All of the above (in families with or without a relative with DMD, in all racial backgrounds) | 60.7 |
Screening finds affected infants before symptoms start: | True | 92.8 |
Once a child is found to have DMD: | Treatment may slow down the progress of the disorder | 69.9 |