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. 2012 May 2;4:e4f99c5654147a. [Version 1] doi: 10.1371/4f99c5654147a

Table 3. Questions and respondent answers used to evaluate parents’ perceived usefulness of the information they received and their knowledge of Duchenne muscular dystrophy screening.

Question - Information received Answer %
Were you given any written information about screening for DMD? (n = 138) Yes
No
Don't know/Don't remember
94.9
0.7
4.3
Did you feel you had enough time to read the written information? (n = 130) Yes
No
Don't Know/Don't remember
78.5
17.7
3.8
How well did you understand the written information about DMD screening? (n = 125) Very well/Well/Well enough
Not well/Not at all
96.8
3.2
How helpful was the written information when deciding to have your son screened? (n = 128) Very/Somewhat helpful
Neutral
Not very/Not helpful at all
68.8
24.2
7.0
Did anyone talk to you about the written information for screening? (n = 138) Yes
No
Don't Know/Don't remember
90.6
4.3
5.1
How helpful was this person in explaining screening for DMD? (n = 123) Very/Somewhat helpful
Neutral
Not very/Not helpful at all
94.3
4.1
1.6
Did this person give you enough time to ask questions about DMD screening? (n = 124) Yes
No
Don't know/Don't remember
92.7
1.6
5.6
Question - Knowledge (n = 135) Correct Answer %
DMD is: The most common form of muscular dystrophy 63.0
DMD is a genetic condition that weakens the: All of the above (arm and leg, heart, and breathing muscles) 40.7
DMD can happen: All of the above (in families with or without a relative with DMD, in all racial backgrounds) 60.7
Screening finds affected infants before symptoms start: True 92.8
Once a child is found to have DMD: Treatment may slow down the progress of the disorder 69.9