Important |
Outcome of contribution |
I would like that. That would be very interesting. It would be nice, if I participate in a study and a paper is written, to get the paper even though I wouldn’t understand probably the abstract, but I could look through it and see that I feel that I’ve made a contribution. Whether mine actually helped or not I can at least think it did. (Biobank-C10)
It’s important to know what they’re doing, why they’re doing it. They’re not just coming around and giving you a test and saying, “Okay, filled out, see you later.” No, you’d like to know that your time and effort is getting some kind of results. (Epilepsy-D06)
I mean I’m curious, “Has this helped anybody? Have they found any great answers? Are they coming up with new methods?” (Diabetes-S08)
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Stay updated |
It’s important to me. I find the research interesting and obviously we have a personal interest in it, but even if the information wasn’t something that was going to be directly applicable to my family or something, I think it’s helpful to know. I want to know as much as I can. (Autism, SAGE-S24)
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Provide information to family |
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Answers |
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