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. Author manuscript; available in PMC: 2012 Jul 12.
Published in final edited form as: J Empir Res Hum Res Ethics. 2011 Dec;6(4):3–20. doi: 10.1525/jer.2011.6.4.3

TABLE 2.

Interview Participant Characteristics (n = 78).

n %*
Age: Mean = 43; range = 21–67
Education
    High school 13 17
    Associate’s degree 3 4
    Some college 6 8
    Bachelor’s degree 37 47
    Graduate degree 18 23
Sex
    Female 50 64
    Male 28 36
Race
    White 67 86
    Black 8 10
    Other 3 4
    Hispanic 2 3
Original study
    Gene Modifiers in Cystic Fibrosis (CF) 9 12
    Environmental Polymorphisms Registry (Milbank) 15 19
    Genetics and Pharmacogenetics of Epilepsy (Epilepsy) 29 37
    Autism Genetic Resource Exchange (AGRE) 13 17
    Study of Autism Genetics Exploration (SAGE) 5 6
    SEARCH for Diabetes in Youth (Diabetes) 7 9
Recontacted about follow-up study 39 50
*

May not sum to 100% due to missing data.