Positive |
Sign of scientific advancement |
I think that’d be great … you would know that the other study worked. (CF-C16)
That’s fine. I mean, DNA, that sounds like it could be moving, progressing somewhere. Yeah, that would be good. (Epilepsy-D06)
I would be very happy about that. I mean I would say, “Yay, I’m helping make a difference finding something.” (Autism, SAGE-S23)
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Facilitate more research |
It’s always good to learn new things about genetics and DNA. So I think it’d be great to learn new stuff and do more research based on what’s been learned. That’s the whole point of doing research. (CF-C17)
Oh, I’m fine with that … if they found, let’s say, we have a predisposition to autism on gene chromosome number 8 or whatever, I’d be fine like if they took all the people they thought that had this … and did another study. I think that’s great. (Autism, AGRE-S02)
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Positive, would want results |
Would want to know what researchers had learned |
If there was something they learned about my DNA, and they want to look into it further, I would understand the value of that. I would have no problems with that. I mean for obvious reasons I might be a little anxious if there was something that they found out. I would want to know what it is. (Biobank-C11)
That would be fine, although I’d wanna know probably what they see that makes them want to look at my DNA. (Epilepsy-D05)
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Inform participation decision |
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Positive, with some reservations |
Advance notice |
Being up front in the beginning is the key to it. If I agree to something ahead of time, I know they’re doing it. If I assume that I’m an anonymous donor, and then later on I find out I’m not, then I feel betrayed I guess is the right term for it. (Biobank-C10)
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Confidentiality |
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Nature of the information |
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