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. Author manuscript; available in PMC: 2013 Aug 1.
Published in final edited form as: Am J Med Genet A. 2012 Jun 18;158A(8):1877–1884. doi: 10.1002/ajmg.a.35425

Table I.

Sociodemographic and clinical characteristics of sample (n = 266)

Variable n (%)
Gender
 Female 228 (97)
 Male 8 (3)
Ethnicity
 Not Hispanic/Latino 222 (96)
 Hispanic/Latino 10 (4)
Race
 American Indian/Alaska Native 1 (0.4)
 Asian 6 (3)
 Native Hawaiian or other Pacific Islander 0
 Black of African American 2 (1)
 White 210 (91)
 More than one race 12 (5)
Relationship status
 Committed relationship 218 (83)
 Not committed relationship 38 (17)
Residency
 USA 180 (82)
 Not USA 38 (18)
Highest level of education attained
 Elementary school, High school/GED, Technical college 27 (12)
 Some college 52 (24)
 College graduate 82 (37)
 Graduate school 59 (27)
Annual household income ($)
 <30,000 13 (15)
 30,000 – 50,000 14 (16)
 50,001 – 70,000 24 (27)
 >70,000 38 (42)
Age of respondent (mean (range)) 40y (22 – 68y)
Age of 1st child described (mean (range)) 9.5y (2m – 31y)
Number of undiagnosed children
 1 188 (86)
 2 25 (11)
 3 5 (2)
 4 1 (0.4)
Length of time 1st child described has been sick
 <6 years 112 (51)
 ≥6 years 107 (49)