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. Author manuscript; available in PMC: 2013 Aug 1.
Published in final edited form as: Am J Med Genet A. 2012 Jun 18;158A(8):1877–1884. doi: 10.1002/ajmg.a.35425

Table II.

Means and standard deviations of key variables and primary outcomes.

Variable (scale range) Mean (SD) Range
Perceived personal control (1–7) (General perceptions of control over child undiagnosed condition) 2.96 (1.6) 1 – 7
Perceived disease severity (1–7) (General perceptions of disease severity) 5.23 (1.3) 2 – 7
Life Orientation Test – Revised (0 – 24) (optimism) 12.8 (4.7) 0 – 24
Parents' Perception of Uncertainty in Illness Scale (31 – 155) 107.8 (15.4) 62 – 152
 Ambiguity subscale (13 – 65) 45.8 (8.1) 20 – 65
 Lack of Clarity subscale (9 – 45) 29.6 (6.0) 15 – 45
 Lack of information subscale (5 – 25) 18.5 (3.2) 8 – 25
 Unpredictability subscale (4 – 20) 14.0 (2.9) 7 – 20

SD, standard deviation