Table 2.
Patient-centred needs and outcomes. Key: I: information; E: education; M: medical needs; PS: psychological support; R: rehabilitation; PA: practical assistance.
| Short-term effects | Short-term needs/rehabilitation interventions | Patient-centred rehabilitation outcomes |
|---|---|---|
|
| ||
| Mortal body | ||
| Shock | Psychological support (PS) | Accommodation of the event to the individual's altered way of being |
| Fear of recurrence | Diagnosis and treatment of cause (M; I) Explanation of treatment and cause (M; I) Information provision (I) Psychological support (PS) Secondary prevention (M; I; E) |
Understanding of cause and treatment Fear is manageable and does not hamper daily living Secondary prevention strategies are in place Nonrecurrence |
|
| ||
| Intermediate effects | Intermediate needs | Patient-centred outcomes |
|
| ||
| Situated body | ||
|
| ||
| Attitude to life Coping |
Education: effects of stroke and likely outcomes (I; E) Coping skills: assessment and training (PS) |
Knowledge of effects of stroke and likely outcomes Implementation of effective coping skills and strategies |
| Reclaiming normality Stroke has/has not affected me Work |
Psychological support (PS) Management of fatigue (PS; R) Rehabilitation: individual's role in the family (R) Rehabilitation: social/leisure activities; vocational rehabilitation; driving (R) Identification of practical support needs (PA) |
Awareness and acceptance of impact of stroke on personal identity Resumption of former roles and/or Adaptation to altered ability to participate in former roles |
|
| ||
| Long-term effects | Long-term needs | Patient-centred outcomes |
|
| ||
| Embodied perception of difference | ||
|
| ||
| Sense of difference Tiredness Cognitive effects |
Psychological effects of stroke: diagnosis, assessment and education (PS) Management of fatigue (PS; R) Cognitive effects of stroke: diagnosis, assessment and education (R; PS) |
Effective management of psychological effects of stroke Effective management of fatigue Effective management cognitive impairments |
| Social difference Relationships Being in public |
Body image, self-esteem: assessment (PS) Sense of self: awareness and understanding (PS) Self-efficacy (I; PS) Practical support: assessment and equity of access (PA) Family function: assessment; relationship counselling (PS) |
Awareness and acceptance of impact of stroke on body image, self-esteem, and sense of identity/self Resumption of former relationships (family and society) Acceptance of sameness/difference Effective family functioning; “healthy” relationships |
The table is divided into three sections: mortal body, situated body, and embodied perception of difference, which reflect the subthemes from the qualitative interviews. These sections are mapped to short-, medium-, and long-term effects of stroke. This temporal perspective reflects the ways in which the experience of stroke and associated needs and outcomes change over time. The table comprises three columns, that is, effects of stroke, patient-centred needs/rehabilitation interventions, and patient-centred rehabilitation outcomes.