Table 2.

Outcome measures in the COMPAS study

Patient		Concept	baseline	6 months	12 months	18 months	24 months
Primary outcomes	Neuropsychiatric inventory [37]	Behavioural and psychological symptoms *	X	X	X	X	X
Secondary outcomes	Quality of Life in Alzheimer’s Disease [45]	Quality of Life**	X	X	X	X	X
	Short Form-12 [46]	Health related Quality of Life*	X	X	X	X	X
	EuroQol- 5D + C [47]	Health Related Quality of Life**	X	X	X	X	X
	Camberwell assessment of needs for the elderly (CANE) [21,48]	Needs**	X	X	X	X	X
Cost outcomes	Cost diary	Economic evaluation	X	X	X	X	X
	Time between diagnosis and institutionalization	Economic evaluation	X	X	X	X	X
	Time between first symptoms and institutionalization	Economic evaluation	X	X	X	X	X
Effect modifiers or confounders	Age		X
	Gender		X
	Marital status		X
	Living accommodation	Living alone or with someone	X
	Education		X
	Mini Mental State Exam [49]	Cognition	X		X		X
	KATZ Activities of Daily Living-5 [50]	Activities of daily living*	X	X	X	X	X
	Co-morbidity		X
	Dementia type		X
	Time in case management		X
Caregiver
Primary outcomes	General Health Questionnaire −12 [38]	Emotional stress mental health complaints	X	X	X	X	X
Secondary outcomes	Short Sense of Competence Questionnaire SSCQ [51]	Perceived care competence	X	X	X	X	X
	Pearlin Mastery Scale [52]	Self-efficacy	X	X	X	X	X
	EuroQol 5D[53]	Health related quality of life	X	X	X	X	X
	Carer-Qol [54]	Health related quality of life	X	X	X	X	X
	SF12 [46]	Health related quality of life	X	X	X	X	X
Cost outcomes	Informal care	Economics evaluation	X	X	X	X	X
Quality of care	Quality indicators [43,55]	Process of Care	X	X	X	X	X
Effect modifiers or confounders	Age		X
	Education		X
	Relation to person with dementia		X

*by proxy, **patient and proxy.