Table B.1.
List of Study Measures
| Measures | Participant Completion |
Time Point | Description |
|---|---|---|---|
| Demographic Data Interview | Adolescent & Surrogate | Screen | Demographic data collection |
| HIV Dementia Scale [69] | Adolescent & Surrogate | Screen, 4,5,6,7 | Rapid screener to identify HIV dementia |
| Psychological Interview [70] | Adolescent & Surrogate | Screen | Questions from the NIH Diagnostic Interview for Children –R to assess suicidality, homicidality, psychosis, & depression |
| Beck Depression Inventory-II (BDI-II) [71] | Adolescent & Surrogate | Screen, 4,5,6,7 | Assess symptoms of depression and severity |
| Beck Anxiety Scale (BAI) [72] | Adolescent & Surrogate | 0,4,5,6,7 | Assess severity of subjective, somatic, & panic related anxiety symptoms |
| Decisional Conflict Scale [73] | Adolescent | 0,2 | Measures the state of uncertainty about which course of action to take. Revised by Briggs to represent decision-making regarding future medical treatment. |
| Statement of Treatment Preferences [16] | Adolescent & Surrogate | 0,2,4,5,6,7 | Adapted during pilot study, based on expert and community advisory board, to express values and goals related to future decision-making re: frequently occurring situations specific to HIV/AIDS |
| Medication Adherence Self Report Inventory – MASRI [74] | Adolescent | 0,4,5,6,7 | Self-report measure of medication adherence, using the Visual Analogue Scale for estimated adherence in the past month. |
| The Pediatric Quality of Life Inventory™-1I [75–76] | Adolescent & Surrogate | 0,4,5,6,7 | Measures health related QOL in children and adolescents |
| Quality of Life Assessment – Revised, ages 12–20 [77] | Surrogate | 0,4,5,6,7 | HIV-related symptom subscale of the GHAC |
| General Health Assessment for Children–GHAC [78] | Adolescent | 0,4,5,6,7 | HIV-related symptom subscale is a self-report measure assessing QOL |
| Threat Appraisal Scale [79] | Adolescent | 0,4,5,6,7 | Estimate of adolescent’s threat appraisal of HIV when adolescent learned of HIV diagnosis |
| Brief Multidimensional Measurement of Relgiousness/Spirituality - BMMRS-adapted [80] | Adolescent & Surrogate | 0,4,5,6,7 | Assesses the construct of spiritual suffering in adolescents. Coping domain will be used for study purposes. |
| Brief-Religious Coping Questionnaire - Brief RCOPE [81–83] | Adolescent and Surrogate | 0,4,5,6,7 | Assesses positive and negative religious coping methods. Study will use 7-item version that assesses negative religious coping. |
| Satisfaction Scale [16] | Adolescent & Surrogate | 1,2,3 | Developed in pilot study to assess satisfaction with study intervention/session |
| Quality of Patient-Interviewer Communication [84] | Adolescent & Surrogate | 1,2,3 | Tool used to evaluate quality of communication between adolescent/surrogate and the interviewer |
| Medical Chart Abstraction | Chart Abstraction | 0,4,5,6,7 | Mode of transmission, CD4 count, viral load, hospitalization or dialysis since last study visit |
0=Baseline; 1=Session 1; 2=Session 2; 3=Session 3; 4=3-month follow up; 5=6-month follow up; 6=12-month follow up; 7=18-month follow up
I=Interview; CR=Chart Review; Q=Questionnaire