Table 3.
Accuracy of patients’ responses to health history questionnaire items, compared with a study coordinator’s abstraction of the data from the patients’ medical charts.
| Item by website section | Total responses per Item |
Items for which patient’s response matches chart |
Accuracy rate |
|
| My Health as of Today | ||||
| Menopausal status | 20 | 19 | 95% | |
| Stage of current cancer | 20 | 15 | 75% | |
| Treatment received? (yes/no) | 20 | 20 | 100% | |
| Response to last treatment | 20 | 15 | 75% | |
| Pregnant or nursing | 20 | 20 | 100% | |
| Current well-being | 20 | 20 | 100% | |
| Hypertension | 20 | 20 | 100% | |
| Cardiac arrhythmia | 20 | 20 | 100% | |
| Other medical problems | 20 | 17 | 85% | |
| Disease in axillary lymph nodes | 20 | 16 | 80% | |
| Disease in nonaxillary lymph nodes | 20 | 19 | 95% | |
| Disease in bone | 20 | 19 | 95% | |
| Disease in brain or spinal cord | 20 | 19 | 95% | |
| Disease in chest wall | 20 | 17 | 85% | |
| Disease in other sites | 20 | 20 | 100% | |
| Subtotals | 300 | 276 | 92.0% | |
| My Cancer | ||||
| Date of breast cancer diagnosis | 20 | 19 | 95% | |
| Stage at diagnosis | 20 | 18 | 90% | |
| Type of cancer | 20 | 17 | 85% | |
| Estrogen receptor status | 20 | 18 | 90% | |
| Progesterone receptor status | 20 | 13 | 65% | |
| Positive lymph nodes | 20 | 17 | 85% | |
| Sentinel node biopsy | 20 | 17 | 85% | |
| Local recurrence | 20 | 20 | 100% | |
| Metastasis | 20 | 19 | 95% | |
| Inflammatory breast cancer | 20 | 19 | 95% | |
| HER2/neua status | 20 | 16 | 80% | |
| Subtotals | 220 | 193 | 87.7% | |
| My Treatment | ||||
| Treatment modality (eg, surgery, radiation, chemotherapy) | 96 | 84 | 88% | |
| Type of surgery (eg, mastectomy) | 150 | 137 | 91.3% | |
| Location of radiation therapy (eg, breast, bone) | 63 | 57 | 90% | |
| Type of hormone therapy (eg, tamoxifen) | 91 | 90 | 99% | |
| Type of bisphosphonate therapy (eg, Zometab) | 12 | 12 | 100% | |
| Type of biologic therapy (eg, Herceptinc) | 8 | 8 | 100% | |
| Type of chemotherapy (eg, paclitaxel) | 340 | 328 | 96.5% | |
| Setting (neoadjuvant, adjuvant, metastatic) | 88 | 81 | 92% | |
| Overall response (eg, no cancer, cancer progressed) | 88 | 58 | 66% | |
| Subtotals | 936 | 855 | 91.4% | |
| Total | 1456 | 1324 | 90.93% | |
a Human epidermal growth factor receptor 2.
b Generic name zoledronic acid.
c Generic name trastuzumab.