Table 3.
Top 10 Health Issues in Multiple Myeloma by Mean Rating of Importance to HRQL by Providers and Patients with Content Development Decision
| Provider Top 10 Items | |||
|---|---|---|---|
| Item | Mean (n = 13) | SD | Item Retained in FACT-MM |
| I have bone pain | 2.9 | 0.3 | X |
| I have certain parts of my body where I experience pain |
2.9 | 0.4 | X |
| I have trouble walking because of bone pain | 2.9 | 0.4 | X |
| I get tired easily | 2.6 | 0.1 | X |
| I feel discouraged about my illness | 2.5 | 0.7 | X |
| I need help doing my usual activities because of bone pain |
2.5 | 0.5 | X a |
| Bone pain interferes with my ability to care for myself |
2.5 | 0.5 | |
| I have bone pain even when I sit still | 2.5 | 0.8 | |
| I am forced to rest during the day because of bone pain |
2.5 | 0.7 | |
| I feel fatigued | 2.5 | 0.5 | X |
| Patient Top 10 Items b | |||
| Item | Mean (n= 13) | SD | Item Retained in FACT-MM |
| I am satisfied with my sex life | 1.3 | 1.0 | c |
| I feel uncertain about my future health | 1.2 | 0.8 | c |
| I have gained weight | 1.0 | 1.2 | X |
| I get tired easily | 1.0 | 1.0 | X |
| I worry that I might get new symptoms of my illness |
1.0 | 1.0 | X |
| Because of my illness, I have difficulty planning for the future |
1.0 | 0.9 | X |
| I have emotional ups and downs | 0.9 | 0.9 | X |
| I have trouble concentrating | 0.9 | 1.1 | X |
| I worry about getting infections | 0.9 | 1.0 | X |
| I feel weak all over | 0.8 | 1.0 | X |
Provider and patient scores are based on a 0-3 scale, where 0 indicated “not at all important” and 3 indicated “extremely important”; n=13 for all.
a
A modified version of this item was retained based on an existing FACIT item.
b
Reporting only disease-based health issues and not those related to satisfaction with treatment or provider communications.
c
These items are already captured in the FACT-G which is typically administered along with the MM subscale