Table 4.
Top Five Patient-Defined HRQL Issues, Overall and Important (n = 13)
| Definition of HRQL a | Important to HRQL b | ||
|---|---|---|---|
| Frequency n (%) |
Health Issue | Frequency n (%) |
Health Issue |
| 9 (69) | Performing ordinary, day-to-day activities |
6 (46) | Emotional distress d |
| 7 (54) | Enjoying life and able to do enjoyable activities |
5 (38) | Daily, normal physical activities |
| 3 (23) | Absence of pain | 4 (31) | Pain |
| 3 (23) | Feeling emotionally well | 3 (23) | Recreational activities |
| 2 (15) | Having energy c | 2 (15) | Fatigue e |
a
Responding to the question, “What does quality of life mean to you?”
b
Responding to the question, “What do you think is important when you think of quality of life?”
c
Described as being able to participate in social activities, also reported by two patients.
d
Described as anxiety, worry, depressed mood, and despair.
e
Interference of fatigue in enjoying relationships with family and friends (2) and eating normal food (2) described.