Table 4.
Multivariate adjusteda odds ratios (OR) and 95% confidence intervals (95% CI) for unmet information needs among adolescents and young adult cancer survivors by sociodemographic and health-related characteristics.
| Handling concern about cancer returning OR (95% CI) | How to check signs that cancer has returned OR (95% CI) | New treatments for your cancer OR (95% CI) | Complementary and alternative treatments OR (95% CI) | Possible long term side effects OR (95% CI) | Financial support for medical care OR (95% CI) | Having own children in future OR (95% CI) | Concern about getting another type of cancer OR (95% CI) | |
|---|---|---|---|---|---|---|---|---|
| Age group (years) | ||||||||
| 15-19 years | 0.67 (0.31 - 1.46) | 0.66 (0.29 - 1.50) | 0.33 (0.14 - 0.75) | 0.18 (0.07 - 0.45) | 0.45 (0.21 - 0.98) | 0.31 (0.13 - 0.75) | 0.68 (0.29 - 1.60) | 0.42 (0.19 - 0.92) |
| 20-29 years | 0.91 (0.57 - 1.45) | 0.93 (0.58 - 1.49) | 0.80 (0.50 - 1.28) | 0.45 (0.27 - 0.75) | 0.84 (0.54 - 1.31) | 0.67 (0.41 - 1.09) | 0.93 (0.56 - 1.56) | 0.69 (0.43 - 1.11) |
| 30-39 years | reference | reference | reference | reference | reference | reference | reference | reference |
| Gender | ||||||||
| Female | reference | reference | reference | reference | reference | reference | reference | reference |
| Male | 1.67 (1.05 - 2.65) | 1.49 (0.93 - 2.38) | 1.68 (1.05 - 2.69) | 1.83 (1.11 - 2.99) | 1.57 (1.01 - 2.46) | 1.52 (0.93 - 2.48) | 0.89 (0.54 - 1.47) | 1.56 (0.98 - 2.50) |
| Race/ethnicity | ||||||||
| Non-Hispanic White | reference | reference | reference | reference | reference | reference | reference | reference |
| Asian /Pacific Islander | 1.18 (0.59 - 2.36) | 1.05 (0.53 - 2.09) | 1.07 (0.54 - 2.13) | 0.78 (0.38 - 1.61) | 0.68 (0.34 - 1.33) | 1.12 (0.54 - 2.31) | 0.41 (0.19 - 0.86) | 1.39 (0.69 - 2.81) |
| Black and AI/AN | 2.19 (1.07 - 4.49) | 2.36 (1.13 - 4.96) | 2.37 (1.11 - 5.03) | 2.50 (1.05 - 5.93) | 1.38 (0.70 - 2.72) | 4.78 (2.11 - 10.84) | 1.77 (0.79 - 3.97) | 1.62 (0.77 - 3.42) |
| Hispanic | 1.51 (0.90 - 2.53) | 2.47 (1.43 - 4.26) | 1.84 (1.07 - 3.16) | 1.79 (1.00 - 3.20) | 0.66 (0.40 - 1.08) | 1.79 (1.03 - 3.11) | 1.48 (0.84 - 2.62) | 1.10 (0.64 - 1.87) |
| Education | ||||||||
| College graduate or post-graduate | reference | reference | reference | reference | reference | reference | reference | reference |
| High school or less | 1.44 (0.80 - 2.61) | 1.17 (0.63 - 2.15) | 1.48 (0.79 - 2.77) | 0.83 (0.43 - 1.62) | 1.21 (0.68 - 2.14) | 1.00 (0.54 - 1.87) | 0.80 (0.40 - 1.60) | 1.53 (0.83 - 2.81) |
| Some college or associate degree | 1.58 (0.97 - 2.56) | 0.75 (0.45 - 1.23) | 1.06 (0.65 - 1.72) | 0.98 (0.58 - 1.67) | 1.46 (0.91 - 2.34) | 1.34 (0.80 - 2.23) | 1.31 (0.76 - 2.27) | 1.41 (0.86 - 2.30) |
| Currently in Treatment | ||||||||
| No or unknown | reference | reference | reference | reference | reference | reference | reference | reference |
| Yes | 0.53 (0.30 - 0.94) | 0.81 (0.44 - 1.48) | 0.96 (0.53 - 1.74) | 1.02 (0.54 - 1.94) | 0.53 (0.30 - 0.92) | 1.01 (0.55 - 1.86) | 0.46 (0.23 - 0.90) | 0.97 (0.53 - 1.76) |
| Marital Statusb | ||||||||
| Married | reference | reference | reference | reference | reference | reference | reference | reference |
| Not married | 0.92 (0.56 - 1.51) | 1.14 (0.69 - 1.90) | 1.24 (0.75 - 2.08) | 1.89 (1.08 - 3.31) | 0.93 (0.57 - 1.50) | 1.52 (0.89 - 2.59) | 0.98 (0.55 - 1.72) | 1.25 (0.75 - 2.07) |
| Raising children | ||||||||
| No | reference | reference | reference | reference | reference | reference | reference | reference |
| Yes | 1.12 (0.68 - 1.86) | 1.42 (0.84 - 2.40) | 1.25 (0.74 - 2.12) | 0.90 (0.51 - 1.57) | 0.88 (0.54 - 1.44) | 1.43 (0.84 - 2.46) | 0.54 (0.30 - 0.97) | 1.02 (0.61 - 1.71) |
| General Health | ||||||||
| Excellent | reference | reference | reference | reference | reference | reference | reference | reference |
| Very good/ good | 1.13 (0.63 - 2.02) | 1.28 (0.70 - 2.33) | 1.16 (0.64 - 2.10) | 0.98 (0.53 - 1.80) | 1.68 (0.94 - 3.00) | 1.39 (0.75 - 2.61) | 1.06 (0.58 - 1.96) | 1.40 (0.79 - 2.49) |
| Fair or poor | 1.75 (0.78 - 3.94) | 1.89 (0.81 - 4.39) | 1.37 (0.60 - 3.11) | 1.12 (0.47 - 2.68) | 2.35 (1.07 - 5.17) | 2.06 (0.87 - 4.88) | 2.13 (0.87 - 5.20) | 2.73 (1.16 - 6.43) |
| Quality of care | ||||||||
| Very good, excellent, missing/ invalid | reference | reference | reference | reference | reference | reference | reference | reference |
| Good | 1.61 (0.85 - 3.06) | 1.59 (0.83 - 3.03) | 1.39 (0.74 - 2.60) | 0.99 (0.52 - 1.90) | 1.18 (0.66 - 2.13) | 1.95 (1.01 - 3.74) | 1.47 (0.75 - 2.87) | 1.39 (0.73 - 2.67) |
| Fair or poor | 2.49 (0.65 - 9.61) | 2.24 (0.57 - 8.78) | 4.06 (0.83 - 19.78) | 2.11 (0.54 - 8.24) | 3.05 (0.78 - 11.86) | 9.27 (1.10 - 78.52) | 1.95 (0.48 - 8.01) | 1.50 (0.39 - 5.85) |
| Health or emotional problems interfere with activities | ||||||||
| None of the time | reference | reference | reference | reference | reference | reference | reference | reference |
| A little or some of the time | 2.89 (1.82 - 4.58) | 2.47 (1.55 - 3.93) | 1.29 (0.81 - 2.07) | 1.53 (0.93 - 2.52) | 1.51 (0.96 - 2.36) | 1.46 (0.89 - 2.39) | 1.99 (1.18 - 3.35) | 2.04 (1.28 - 3.23) |
| Most or all of the time | 2.66 (1.20 - 5.86) | 2.47 (1.07 - 5.70) | 2.65 (1.14 - 6.18) | 2.19 (0.86 - 5.58) | 2.19 (1.01 - 4.72) | 3.85 (1.53 - 9.68) | 1.76 (0.73 - 4.27) | 2.97 (1.23 - 7.17) |
| Treatment | ||||||||
| Surgery only | reference | reference | reference | reference | reference | reference | reference | reference |
| Radiation and chemotherapy | 1.25 (0.57 - 2.75) | 1.42 (0.63 - 3.21) | 1.11 (0.49 - 2.48) | 1.03 (0.42 - 2.51) | 1.97 (0.89 - 4.36) | 1.44 (0.62 - 3.31) | 1.82 (0.73 - 4.52) | 1.23 (0.55 - 2.76) |
| Chemotherapy | 1.55 (0.77 - 3.14) | 0.99 (0.48 - 2.06) | 0.90 (0.43 - 1.85) | 0.59 (0.26 - 1.31) | 2.41 (1.17 - 4.93) | 1.13 (0.54 - 2.36) | 1.70 (0.75 - 3.83) | 1.03 (0.50 - 2.10) |
| Radiation | 0.94 (0.40 - 2.19) | 0.91 (0.38 - 2.19) | 0.57 (0.24 - 1.36) | 0.62 (0.24 - 1.59) | 1.00 (0.42 - 2.37) | 0.78 (0.32 - 1.90) | 1.34 (0.51 - 3.49) | 0.97 (0.40 - 2.31) |
| Missing/unknown/no treatment | 2.04 (0.78 - 5.35) | 1.70 (0.63 - 4.56) | 1.21 (0.45 - 3.24) | 2.02 (0.63 - 6.43) | 2.22 (0.86 - 5.73) | 0.79 (0.29 - 2.15) | 1.26 (0.44 - 3.62) | 1.15 (0.44 - 3.01) |
| Total symptomsc | ||||||||
| 0 | reference | reference | reference | reference | reference | reference | reference | reference |
| 1-2 | 1.16 (0.63 – 2.13) | 2.15 (1.14 – 4.06) | 1.31 (0.71 – 2.40) | 1.61 (0.85 – 3.06) | 1.25 (0.69 – 2.29) | 1.38 (0.72 – 2.62) | 2.55 (1.30 – 5.03) | 1.96 (1.08 – 3.56) |
| 3-4 | 1.60 (0.82 – 3.12) | 3.30 (1.65 – 6.61) | 2.10 (1.06 – 4.17) | 2.53 (1.23 – 5.19) | 1.65 (0.85 – 3.19) | 1.59 (0.78 – 3.24) | 3.39 (1.59 – 7.22) | 2.31 (1.17 – 4.53) |
| 5+ | 1.70 (0.81 – 3.54) | 3.55 (1.65 – 7.63) | 1.79 (0.84 – 3.80) | 1.66 (0.76 – 3.66) | 1.90 (0.92 – 3.90) | 1.55 (0.71 – 3.39) | 2.85 (1.24 – 6.53) | 2.04 (0.98 – 4.26) |
| AJCC stage at diagnosis | ||||||||
| I | reference | reference | reference | reference | reference | reference | reference | reference |
| II | 0.71 (0.41 - 1.23) | 0.68 (0.39 - 1.20) | 0.66 (0.37 - 1.17) | 0.73 (0.40 - 1.32) | 0.83 (0.48 - 1.42) | 0.61 (0.34 - 1.10) | 0.57 (0.30 - 1.08) | 0.80 (0.45 - 1.39) |
| III/IV | 0.99 (0.57 - 1.72) | 0.79 (0.45 - 1.38) | 0.85 (0.47 - 1.51) | 0.92 (0.49 - 1.70) | 0.69 (0.41 - 1.19) | 0.92 (0.51 - 1.65) | 0.69 (0.37 - 1.30) | 1.05 (0.60 - 1.86) |
| Unstaged | 1.51 (0.55 - 4.19) | 1.53 (0.52 - 4.56) | 1.35 (0.47 - 3.87) | 2.33 (0.77 - 7.00) | 2.06 (0.76 - 5.59) | 1.00 (0.35 - 2.85) | 0.75 (0.25 - 2.25) | 1.36 (0.48 - 3.89) |
| Unknown | 1.54 (0.54 - 4.43) | 2.13 (0.64 - 7.02) | 0.61 (0.22 - 1.70) | 2.86 (0.79 - 10.41) | 1.98 (0.70 - 5.62) | 1.87 (0.57 - 6.14) | 1.78 (0.57 - 5.53) | 1.32 (0.44 - 3.98) |
a
Adjusted for all the variables in the table.
b
Married includes married or living as married; unmarried includes single, divorced, or separated
c
Symptoms included nausea/vomiting, frequent/severe stomach pain, diarrhea/constipation, pain in joints/bones, weight loss, weight gain, frequent/severe fevers, hot flashes, tingling/weakness/clumsiness of the hands/feet, frequent/severe headaches, frequent/severe mouth sores that impact eating/drinking, problems with memory/attention/concentration.