Table 2.

Patient interview responses

Emotions of patient when introduced to transition	Quotes from patient interviews about transition20
Leaving current provider	“Why are you trying to send me over there. I’ve been knowing you since I was a little girl to now and how could you. You know me, you know my daddy and my mamma.” “It’s like someone pulled the rug out under me.”
Establishing trust with new provider	“Who was going to be my doctor and was she going to be nice from the time when I come over?” “I was worried what the new doctor would be like. How would he know how to take care of me the way you guys would.”
Distrust of adult provider	“People don’t treat you with respect and kindness.” “I’ve had a problem with doctors trusting me with my medication, but I have to explain that it’s me in pain, I don’t want to be in pain. I would be the last person to misuse my medications.” On adult ER setting: “We are going to treat her like every other sickle cell patient. We are going to give her some drugs and kick her out the door.”
Navigating new health care system	“How to get used to being over here instead of going to Children’s. The different scenery.” “I was definitely concerned about switching because that’s all I knew – Children’s and the doctors I was seeing there. I was definitely scared to move over to (the adult hospital).”