Impact of illness on decision to participate in a research study |
In general, how would you describe your health? Scale: Excellent=0, Good=1, Fair=2, Poor=3
|
Benefits of research; benefits of participating in research |
Doctors and nurses will pay more attention to you if you are in a research study. |
|
You can get new medications for your HIV if you are in a research study. |
|
Scale: Strongly disagree=1; Strongly agree=5 |
Barriers to participating; inconveniences, burdens of participating in research |
How worried are you …… that you will be treated like a “guinea pig” in a research study? |
|
… that a research study will interfere with your current HIV treatment? |
|
Scale: Not at all worried=1; Worried a lot=5 |
“Triggers” to participating in a study |
In deciding to be in a research study, how important … |
|
… is your doctor's opinion? |
|
… is the amount of money you get paid for being in the research? |
|
Scale: Not at all important=1; Very important=5 |
Self-efficacy: Degree of certainty that one can perform activities associated with participating in research |
You can get to all the appointments for a research study. |
|
You can tell your doctor if you want to stop being in a research study. |
|
Scale: Cannot do at all=1; Completely certain I can do=5 |