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. Author manuscript; available in PMC: 2012 Oct 29.
Published in final edited form as: J Empir Res Hum Res Ethics. 2012 Apr;7(2):3–19. doi: 10.1525/jer.2012.7.2.3

TABLE 3.

Best Practices for Research Ethics Education for Community-Engaged Research.

Recommendations Curricular Elements and Activities
Educate community partners together with academic researchers and institutional groups involved in research review
  • Opportunities for information exchange among academic, community partners, and IRBs

  • Team training

  • Case-based discussions

Focus on ethical and regulatory requirements that relate to specific research project
  • What do learners need to know for their roles and responsibilities?

  • What is relevant to the research design?

  • What is relevant to the setting and participant population?

  • Review of population-specific regulatory requirements for informed consent (e.g., children and assent)

  • Eliminate discussions of issues pertinent only to biomedical clinical trials if research involves survey methods only

Integrate ethics education with protocol-specific training
  • All examples should be relevant to research protocol

  • Anticipate specific ethical dilemmas that may arise in field

  • Cover process issues related to protocol adherence and data integrity

  • Review actual study informed consent document

  • Discuss what to do when someone does not meet inclusion criteria but insists they want to participate

  • Review best practices for recordkeeping and documentation

Provide hands-on opportunities to practice new skills
  • Role plays to practice recruitment and informed consent

Offer opportunities for ongoing education and discussion about ethical issues
  • Establish a continuous feedback loop between field staff and investigators

  • Weekly field staff meetings with standing agenda to discuss recruitment problems, stress, and distress

Review ethical issues unique to CEnR
  • Partnership challenges

  • Risks to groups

  • Conflicts of interest

  • Case-based discussions about social implications of research for all community members

  • Ask participants to identify issues that may arise in the study they will be working on

Discuss communication issues and strategies
  • How to ask questions when you do not understand

  • How to speak up when you think something is wrong

  • Consensus-building

  • Role plays in which individuals assume the parts of different stakeholders