TABLE 4.

Research Agenda for Ethical Issues in CEnR.

Research on Educational Methods Evaluate research ethics education programs Identify effective instructional methods for different learner groups Gather information on research roles played by community partners in order to tailor education to specific levels of engagement

Research on Defining and Resolving Ethical Issues Explore how different stakeholders define, approach, and resolve ethical issues Test and refine models for facilitating consensus when stakeholders disagree

Research on Participant Views Determine actual and potential participants’ opinions, preferences, and values regarding (for example) autonomy and informed consent privacy and confidentiality protections barriers to research participation group stigmatization resulting from research participation or findings potential for research to cause distress

Research on Ethical Challenges Unique to CEnR Describe the types of financial relationships that exist between academic-community partners Examine the potential harms of community partners’ dual roles and competing priorities Describe real and potential cases of harm to communities and individuals qua community membership Identify sources of potential stress and distress among community research partners and develop strategies for minimizing stress and distress Characterize common problems and describe differences among research designs, populations, and settings Recognize and explore areas in need of ethical clarification